Posted By Posting
Jul 22, 2008
Shannon Gilmore Mother of Verdayne
On reglen 1ml 3xdaily, Omeprazole solution 4ml 2xdaily, Pulmicort ampules 2.5 2xdaily and albuteral every 4hrs. On NG Tube 30ml of food every hour continuous. Diagnosis: Severe GERD, Tracheomalasia, elongated epigloottis, small lower left luncg bronchiole, Atresia of the Vocal Cords , Chronic Aspiration Pneumonia and Asthma. Hospitalized every month since birth, stays are a minimum of 3 days. Surgical Consultation for GTube and Nissen on 7/23 ENT appoint on 7/24 to look at epiglottis and vocal cords. Also has Hypertonia, severe neck crease and receiving OT, PT and early intervention, SSI and DDD(Dept of Dev Disability) and Medicaid (AHCCCS) Cannot raise tummy of ground with arms cannot roll all the way over, cannot handle tummy time nor can she lay on back for too long. Sitting she is always hunched over in a C shape.
Thanks to all the ladies for the Advice!
Thanks ladies... for all the comforting support and advice about being a SAHM. In a way I am looking forward to it and doing things with my kids more I will definately check into all the advice you ladies gave me. God Bless you all. and wish us luck tomorrow!!
Jul 22, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Good luck tomorrow!!! thanks for checking in! I think of you guys all the time. You have been through so much in such a short time. let us know what comes of the appointment! -Sarah
Jul 22, 2008
amber f
Good luck:) Update when you can!!!
Jul 22, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Oh, I missed the post you're talking about I guess, but....I'm going to work full time next week and the thought is killing me. It's just what I gotta do. Believe me...your time will be much more full than you can imagine, lol. At the beginning of the summer I made a schedule and thought of all kinds of things we could do. Between vacation, working two days a week, and just normal stuff--we haven't done squat.
Check with your
doctor first!