Posted By Posting
Jul 22, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Good update about Elyse :)
Well, the pedi's office was closed at 4:30 and i couldn't even leave a message....but while I was out tonight helping my mom with funeral stuff (for her friend) DH was watching her. We had been talking about trialing whole milk before her GI appt, but my plan was to try it one ounce for a few days and see how she did, and offer it in a cup to help wean from the bottle.

UM.....while I was gone DH fixed her a bottle of MILK and she drank 5 ounces!!! I am excited that she liked it (at least this time she did) but worried about the possible consequences due to her history of MSPI! Then 3 hours later (mind you, she has been going up to 12 hours not drinking anything, and usually at least 5) she drank a 6 ounce bottle of formula! Crazy! So that makes 14 oz formula, 3 oz juice/water mixed, and 5 ounces milk! WHO IS THIS CHILD??? :) Please God, let the milk treat her okay!!!

Jul 22, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
YEA!!!!!!!!!!!!!!!!!!!!!!!! Did I scream that loud enough for ya??
Jul 22, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Jul 22, 2008
amber f
Yay!!! Sometimes days a lot of kids eat good and the next just pick at their foods so maybe she is starting to do a little of that. But I'm so glad she drank so much. Way to go Elyse!
Jul 22, 2008
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Awesome!!! I hope she is still tolerating the milk!
Jul 22, 2008
daughter Emma born 7/25/07
yeah Elyse! keep it up.
Jul 22, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I have been thinking so much of you guys and hoping things would turn around soon. I am so glad to hear she drank! That is great. I really hope the milk goes well. Man, if she gets on milk, your life will really change, that would be wonderful!
Jul 22, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Way to go Elyse!!! I hope that it continues!!!! -Sarah
Jul 22, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
I am sending out happy belly vibrations!
Jul 22, 2008
Mom to Eddie 1/07 and Nicholas 6/08. Eddie allergic and refluxer now on cow's milk!!!! Nicholas also a refluxer on prevacid and breast milk. Mom on elimination diet AGAIN!!
Awesome news!!!
Jul 22, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
great news!!! i so hope that she tolerates the milk well!! glad she drank a bunch for you.
Jul 22, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I am so glad to hear this!!!
Jul 22, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
That's great news! your child has a mind of her own and is doing what she wants WHEN. Good grief, you are in for it when she is a teenager! Glad to hear she is doing better now! Thanks for the update!
Check with your
doctor first!