Posted By Posting
Jul 21, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Update on Jennifer (Aubrey's mom)
Well, I am very sad to tell you guys this, but Jennifer has lost the baby. I am without words to type. She said she will update when she can. I told her how you were all thinking and praying for her.
Jul 21, 2008
stickybean
Jennifer I am so sorry to hear this. Please know that I have been in your position twice. No words can help at this time... but please know I am sending you hugs and I am praying for you, your family, and your precious angel baby. If you want to talk I am here. Jacky
Jul 21, 2008
amber f
Oh Jennifer I'm so sorry! I will be thinking of you and your family. If you need to talk you have my email. (((HUGS)))
Jul 21, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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That's terrible. I hope the she is going to be ok.
Jul 21, 2008
amber f
Danie is she alright physically? I forgot to ask that.
Jul 21, 2008
popz4120
Bryson (3/06), former Neocate, Nexium, and Reglan baby. Diagnosed with peanut allergy and asthma. Weaned from meds in Spring 0f 08. Brother, Parker (6/04), was also on Prevacid and Pregestimil (formula) as an infant.
Jennifer, I am so sorry! We are praying for you and your family. amanda
Jul 21, 2008
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
I am so sorry ((hugs))
Jul 21, 2008
ceramom
Sarah
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Thinking of her and her family during this very very difficult time. Anyone know how far along she was?
Jul 21, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Praying for her and her family.
Jul 21, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Jenn, praying for you, your family and your angel.
Jul 21, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Call ANY TIME Jen! I'm here!
Jul 21, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Sarah, I think she was around 6wks. Not sure exactly.
Jul 21, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
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So sorry to hear this. :( Sending prayers to you and your family.
Jul 21, 2008
emmakins
Wendy
daughter Emma born 7/25/07
sorry Jen - i can't imagine.... - wendy
Jul 21, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I am so sad for her. My thoughts are with you and your family Jen!
Jul 21, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
So sad to read this - prayers and thoughts are being sent along :-(
Jul 21, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
I am so sad to hear this. I was really, really hoping I wasn't going to see this when I opened this post. I hope she's okay physically. I am thinking of Jenn and her family.
Jul 21, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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So sorry to hear this update. Many of us have been there and know what you are going through, so if you need to talk, we are here!
Jul 21, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Jennifer~ I just e-mailed you. I am praying for you. May God shelter you in His arms during this difficult time. Know that we all love you and are here when you need us! ((HUGS))!

Thanks Danie for updating us.
Jul 21, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
She was just about 7 weeks I believe. She was in some pain, she was filling an rx for pain meds when I spoke to her.

Sorry I was so brief, I don't do so good in these situations. I know she will get thru this with all of our support. I am praying for her and her family.

Jul 21, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
God, that is terrible. I am so, so sorry. I cannot even imagine how terrible you must be feeling, Jennifer. I am thinking of you and your family.
Jul 21, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
I was afraid to open this post after I posted on the other thread. I'm so very sad to read this - I know that no words can help at this very difficult time. I'll be thinking of her and her family. Thank you for the update Danie.
Jul 21, 2008
bigdaddy
Liz, mom to Donnie 12/2005
Surgery for Pyloric Stenosis at 5 weeks old
GERD since 4 weeks old
Colic until 13 weeks old
Delayed Gastric Emptying
MSPI
Surgery for Tubes and Adenoidectomy at 14 months old
Anemic since 9 month check
Febrile Seizures
Speech Therapy
MEDS: Zyrtec, Nasonex, Xopenex,
Vitamins with iron, and back on Prevacid as of 12/2008
I am so sorry to hear this. My heart and prayers go out to you!!! -Liz
Jul 22, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Hugs Jennifer. My thoughts are with you. Libby
Jul 22, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
Oh! That is so sad. My heart goes out to her, I'm so sorry this has happened!
Jul 22, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I am so sorry. I have no words. We will be praying for you guys.
Jul 22, 2008
momoftwoboys
Kelly, mom of two boys with GERD. John (born 11/03) was on 40mg Nexium til 15 mos old. Second son Brian (born 05/07) started on Zantac. Now on 22.5 mg Prevacid Solutabs plus Carafate 0.5 ml 1 x day
Jennifer, I am so sorry for your loss too. I had two m/c after John before I had Brian. My heart goes out to you because I know how awful it was to go through that, physically and emotionally. You are in our thoughts and prayers. Take care of yourself.
Jul 22, 2008
arblankenship88
Amanda, mother of 13 month old named Ethan.(5/31/07) Dx with reflux at 4 weeks.Taking off of Zantac around 4 months due to dr, didn't try anymore. Still has some silent reflux which doesn't seem to bother him but worries me some.
I am so sorry to hear this, i will be thinking about you and praying for you family that ya'll get through this rough time in your lifes..Take care of yourself..
Jul 22, 2008
lanymama
Mom to Eddie 1/07 and Nicholas 6/08. Eddie allergic and refluxer now on cow's milk!!!! Nicholas also a refluxer on prevacid and breast milk. Mom on elimination diet AGAIN!!
I am sorry for the loss I am praying for you all Elaine
Check with your
doctor first!