Posted By Posting
Jul 21, 2008
shay8666
Shannon Gilmore Mother of Verdayne
On reglen 1ml 3xdaily, Omeprazole solution 4ml 2xdaily, Pulmicort ampules 2.5 2xdaily and albuteral every 4hrs. On NG Tube 30ml of food every hour continuous. Diagnosis: Severe GERD, Tracheomalasia, elongated epigloottis, small lower left luncg bronchiole, Atresia of the Vocal Cords , Chronic Aspiration Pneumonia and Asthma. Hospitalized every month since birth, stays are a minimum of 3 days. Surgical Consultation for GTube and Nissen on 7/23 ENT appoint on 7/24 to look at epiglottis and vocal cords. Also has Hypertonia, severe neck crease and receiving OT, PT and early intervention, SSI and DDD(Dept of Dev Disability) and Medicaid (AHCCCS) Cannot raise tummy of ground with arms cannot roll all the way over, cannot handle tummy time nor can she lay on back for too long. Sitting she is always hunched over in a C shape.
Sorry I'm back... had a major upset in my life and need some one to talk too
well, ladies last week my mom and my grandma, who I care give for as well, decided they were moving out.... the predicament is now, i have no day care for my sick lo and i have to become a SAHM. I'm worried and scared as it takes two salaries to take care of 3 kids. I'm sure all you ladies went thru the same thing I am now, and just wanted to hear how you were able to get through this. They are leaving in september and I put in my notice to my job that 8/29/08 is my last day. My husband tells me not to worry, and that SSI will increase my daughters money and we will be able to get some food stamps and god will take care of us...
Jul 21, 2008
jmom
Josh 12 yrs colic as a baby
Jenna 6 yrs dream baby
Jessica (6/11/07) Silent reflux dx at 3 weeks
Went off meds successfully at 3 mos
Went back on Prevacid 8 mg TID 1/3/08
Well I don't know you but it sure sounds like you have been thru the ringer. We went to one income before we had kids and it was hard even then. Still we managed. Then we were in an apt and now we have 3 kids and a house. God did provide for us and I'm sure he will for you too. Two things we did was cash in a term life insurance policy and a bond that I had won in high school. You also might be able to get a part time job you could do while your DH is home. I also did the stuff you probably already do-coupons, sales, generic products, shopping resale stores and garage sales. I also stopped buying pop and most process and pre-prepared food and made everything from scratch. It's a lot cheaper. We did meatless meals too. To make meat stretch when I made spaghetti with meat sauce I only used a 1/2 pound of meat instead of a full pound. No one noticed. Can you do some garden stuff? It's easy to grow tomatoes, cucumbers, zucchini, green beans and lettuce, even in large pots. Take care and big HUGS. Cristy
Jul 21, 2008
amber f
A lot of the gov't programs will pay more if your income goes down. I have to also say God does provide. We have come close to not have enough $ to pay bills and something always came along. It will be scarey at first but you will handle it just like you have handled all you have been through! Cristy had a lot of good ideas. Cutting all the corners you can, can stretch the $ farther. Good luck.
Jul 21, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I don't have any additional advice, but wanted you to know that we'll be praying for you. Good luck this week.
Jul 21, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
H
Hi Shannon. How awful - I am so sorry! I can only imagine how stressed you must be feeling. You will be FINE, though. My parents raised three kids on one salary. Now, we had to take out loans for college and buy our own cars (NOT complaining here), but we had enough for the basics...even drive vacations. I keep reading that when you have two incomes, you buy more...and when you have to budget, your money goes so much further. My husband is a grad student and makes $15,000 a year (which sucks, but he is home with me sooooo much), and I make about $45,000 teaching online. Now that's not alot in the area where we live. ANd until last week, we were paying out of pocket for Sebastian's Neocate - like $500 a month. Granted, we only have one child, but we are managing. We are! We just bought a house! We don't get to do fun stuff all the tme - like eat out regularly - but oh, well. I wouldn't trade this time for anything. You will see you will feel that way in time.
Jul 21, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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What state do you live in? I do believe it is in every state, but might only be in california but if you have a child who is medically needy, the state will pay you to take care of them. If you live in california, it is called IHSS (In Home Supportive Services) The program was originally designed for the elderly who weren't too bad to go to a nursing home but still needed some assistance during the day. They offer that for medically needy children too. The office for us is located in the MediCal (California Medicaid) office. If you have not looked in to it, I would definitely check it out. It is not advertised often and most people do not know anything about it, as did I. i was a single mom trying to take care of my medically needy Quinn all by myself, trying to go to school full time and work a full time job while my daughter was going in and out of the hospital and I was only getting paid about 1,300 a month. hardly enough to live off of here. Times were hard for us, but someone mentioned this program. She qualified and it is just like having a full time job. We are doing much better now and I'm able to go to school. Check into it in the state you live. Here is my email if you have anymore questions: miqtpi@yahoo.com -Sarah
Jul 21, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Hi Shannon! We went to one income while I was pregnant and even bought a house! It does mean you can't have everything at the moment you want it; I want a "new" couch from a consignment store but we still have to save up for it and instead of sit down restaurants fast food is a treat! We know that if I was working my clothes would cost more than the Wal-Mart T-shirts that I wear since they end up with drool and pears on them anyway! :) We too trust in God to meet our NEEDS (note: not WANTS) and He has always come through! You can do it!!!
Jul 21, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Do you have WIC out there? My cousin gets that for her two kids...she even got free formula, and she can use the coupons on all kinds of great things in the grocery store...
Jul 21, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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After i had Elyse I was able to stay home for 4 mos, and then went back part time. yeah we can't do everything we want, but I love being able to be with her so much! DH is getting laid off in Dec so we are feeling the pinch too, thinking about it. There are a bunch of websites out there about saving money with a family, I used to always go there for ideas. When we were first married we had some very rough times.

You can also try to find some at home stuff to do like selling Avon, or like someone else said work part time when DH is home. Some women make bank selling pampered chef doing a couple parties a week. but even if you don't work I bet you will be able to get by.

Drink iced tea instead of soda. We ate a lot of beans and rice and pasta and pb&j, and bought used clothes. We borrowed DVDs and videos from friends instead of renting. We also rode bikes or walked a lot for fun, and shopped at the cheap grocery store in town (which I have to again, since I work part time now). If we went out to a movie we brought our own snacks (I know, I know) and went to a matinee. Now we just don't go at all (we would have to pay a babysitter, too...she is on only one med now and not puking 50 times a day so I can actually leave her with one!),

Also like katie's mom said, when you aren't working you don't to wear nice clothes. You also aren't coerced into going out to lunch with coworkers, you don't have to put money in the pot to buy gifts for everyone at work, and you save gas.

Jul 22, 2008
nanibear
Does this ever go away?
hello
I am sorry aoout your predicament. I send my daughter to a medical daycare(medicaid pay for it) and WIC plays for my daughters pedisure and medicaid pays for the duocal I put in her pediasure. Her pedisure is so expensive, I would never be able to pay for it myself. It really helps! I am only able to work part-time. I hope you and your husband can work something out.
Check with your
doctor first!