Posted By Posting
Jul 21, 2008
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
mdbarbagallo - question for you (when you have a chance)
Melissa - have you had any luck finding a new GI? My best friend lives in Columbia and is a Prosthetist and Orthotist just outside Baltimore. If you'd like I can see if she will ask her patients parent's for recs on GIs as she doesn't work with GIs in her day to day stuff. If you'd like me to ask her, can I share a bit of Sebastian's story with her? Libby
Jul 21, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi Libby! I live in Columbia, too! what a small world! Please, by all means share Sebastian's story with her...and I would LOVE some recs! Thanks so much!!
Jul 21, 2008
daughter Emma born 7/25/07
Melissa, i live in York, PA. we have been going to Hershey Medical Center and really like our dr there. granted we see a pulmonologist not a GI. It would be a 2 hour drive for you. we are about 1 hour from you - i have friends in ellicott city! I know a lot of people from our area go to hopkins - because it's the "best" - but hershey has been great for us. If Bassy has any breathing issues i'm sure our pulmo would see him - Dr. Rifkin. in the meantime i'll talk to my uncle - he works at Temple University hospital in Philadelphia - he might be able to recommend someone. - wendy
Check with your
doctor first!