Posted By Posting
Jul 17, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
I'm in tears again....and not because of the pregnancy hormones.
So Jazzy had a great day yesterday, happy smiling etc... But today, totally crap again!! I am crying as I type this. I thought we were in for a run of at least 2 weeks of great days ahead. But still the gas, diarrhea and cramps persist.....................the weird thing is the only thing that was different in her diet was the blueberries. So I'm thinking that foods with seeds in then cause her pain. I'm going to try a low/no residue diet and see if that helps. Meanwhile I'm still waiting for her gastroscopy appoint. in Aug. But I just hate watching her suffer...KWIM?
Jul 17, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Hugs!! I am not sure what to write - just that it totally sucks having to watch your little one suffer. I hope she can feel better soon. Libby
Jul 17, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
UGGGHHHH. I am so, so sorry. You know, Sebastian tested negative for blueberries and he still had problems with them. He got a runny nose and had phlegm...and lots of gas that night. I hope she feels better soon. Poor thing. And poor mom for being stuck having to constantly figure out what is wrong with her daughter. It's just not fair to you.
Jul 17, 2008
amber f
I dont' have much to add but (((BIG HUGS)))
Jul 17, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Oh, I hate it that she's having such a bad day (and mommy too). She certainly deserves more than a day of feeling good. I hope that this latest episode passes quickly. When in August is the appointment? Will they be testing for CSID? Just wondering because of the diarrhea and cramping.
Jul 18, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
:( i go through this all the time with emily, we will have a good run of two weeks then back with the gas bloating and diarehea... it's enough to drive a "non" hormonal person screaming to the looney bin! blue berries are a bit harder to digest b/c of the skins, if you give her whole blue berries you might want to consider peeling them?? i did that w/ Emi at first but my hands were always blue! i was told by a nutritionist i talked to that seeds aren't even really tried to be digested and just kind of pass on through. I kind of find that hard to believe though. August is almost here i can't wait for her to feel better!
Jul 18, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
If you need any help with the low residue diet let me know. I am so sorry that things are not going well for her right now. I am sure it is really stressful, especially when you are pg too! ((HUGS))

RackleyFive@cox.net
Jul 18, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Low Residue Article
I wrote about low residue diets last month for Health Central, it might help. There are some links in the article with foods to avoid etc.

http://www.healthcentral.com/ibd/c/91113/29094/low-low-residue-diets

HTH!
Jul 18, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
WOW Im outta touch..I didnt know that you were pregnant! Blessings! Poor Jazzy- I send her belly fairies!
Check with your
doctor first!