Posted By Posting
Jul 17, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Rory's Ped Appt
Today Rory is 16 months old and weighs a disappointing 18lbs 4 oz. :( She was 17lbs 7oz at her 12 month appt. Not quite a lb in 4 months. She did, however, grow in height to 29.3 inches. :)

Pedi says to keep her on infant formula. Biopsies were all negative, thank goodness. GI says it doesn't mean she doesn't have reflux, but it isn't severe enough to cause damage. The pedi feels the feeding issues are behavioural, caused by the "memory" of reflux. So, GOOD NEWS in that it is not medical.

She said that daycare should be made aware of the behavioural protocols put in place by the clinic and that she has a medical condition that limits her feeding wise. I have to discuss with the feeding team what they think I should do. I would like to see our goals changed to encourage self-feeding and various textures, not just purees. I understand the importance of consistency, though, so I'll see what they say. I have broken protocol lately, and to be honest she's much happier and is eating a bit more by doing a combination of me feeding her and her feeding herself. She's at the age where she WANTS to do it herself, but I want to do what's best in the long run. I will be speaking with the clinic tomorrow. The ped thinks that they will actually go in and speak with the daycare BUT they have the right to refuse her, so I'm nervous of going that route.

GOOD NEWS. She's definitely been accepted to start in September. I have an appt with the daycare next Wednesday. I'm so excited to go back to work, but mostly for Rory to get a chance to play with other kids EVERY day. :)

GOOD NEWS. Rory is saying new words all the time. Shaking her head no, saying "scuse me" when she burps. She's also been "trying" new foods, like licking pickles and green beans, and some baby foods she will lick off her fingers. She can feed herself with the spoon, but you have to encourage her. She's eating bologna and cheese all by herself. BUT the best news of all.........YESTERDAY SHE ATE A WHOLE ARROWROOT COOKIE!!! It always made me sad that she would only nibble one over the course of the day...well, not anymore.....A WHOLE COOKIE!!

All in all, I am feeling positive today.

Jul 17, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Yea Rory!!!!!!! Also from previous post glad you don't have to fight her over the formula issue and glad that she just needs to learn that food is not the enemy! Will she self feed purees if you offer them to her? What if you give her foods she likes and tried to encourage her to do it all herself since she will sometimes feed herself? Katie eats so much better if she is eating with us; she seems to understand it's a "herd" thing to eat together and on days that she refuses all food we will sit down to eat and if she is not in her highchair she cries to be put in and will open her mouth to eat as I do so we end up getting food in her that way. I know you are nervous about the upcoming transistion which is why I bring up the eating in unison thing. Yea for good news!!!
Jul 17, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Man, i feel like my baby is a giant :) At the adjusted age of only 10 mos she was 29.5 inches! (and nearly 20 lbs, sorry ror) i have heard differing opinions from feeding therapists about textures. Some say they need to follow the normal developmental route and start with purees, while others say that if they aren't babies, they don't need to master purees first. If I were her mom, I would be doing what you are doing....letting her eat what she wants! yay for good speech too!
Jul 17, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
What a beautiful child. I love this picture. And I LOVE that she excuses herself when she burps. Perhaps she can teach my husband (and my dog, for that matter!) some manners!

Sorry about the weight gain. My older sister weighed 20 pounds at a year and 20 pounds at two years. She ate nothing and drove my mom bonkers with worry. But now she is a healthy mommy of two! Rory is going to be just fine!!

Congrats on the daycare!!!
Jul 17, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Yeah for the negative biopsies!!! I know you wish she weighed a little more, but she's definitely headed in the right direction.

Like we've talked about before, I think the socialization with the other kids will help with her eating. Halley finally started eating better at home once they moved her up to the young toddler class - a little bit of positive peer pressure goes a long way. About a month ago, Halley actually stole another little girl's chicken finger and started chowing down on it. I started sending more finger foods to daycare after that - guess she got tired of the jarred foods LOL!

It sounds like you're raising a very polite little girl. Mine burps and farts like an old man and doesn't say a word :-)

Check with your
doctor first!