Posted By Posting
Jul 17, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
What do you think?
Ok, Katie had her UGI yesterday and it came back with nothing. She is on Prevacid 10.5 at night, Alimentum, Oats, banana, pear and apples only. She is still refluxing, sometimes pretty badly. I know the prevacid doesn't stop the refluxing and she seems to feel better; not the inconsoleable(sp?) crying but still not an entirely happy baby. The Gi wants to wait to see if the prevacid is helping w/o doing an endoscopy and I gotta admit that it makes me a little on edge. We have been down the medicine takes time road and it didn't take us anywhere we wanted to be so since we still don't have any answers it makes me a little nervous to just sit and wait. My family agrees that we need to wait to see how the medicine works but I want to know why she is still refluxing so badly some days. Her reflux got worse after she started solids and sitting up instead of getting better. Every pedi. said it would get better; it got so much worse. Am I just being paranoid? My FIL died from esophogial cancer after years of reflux so we do have strong family history and dh takes prilosec every day. Thoughts?
Jul 17, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I would say to: see if the dr will split her dose between am and pm. Then I'd cut all the foods out completely and add them back one at a time. I'd give that several weeks. (seems like a lifetime, right?) It's hard to know if it's the foods bc diff. foods affect different babies. I will tell you this though....I still don't consider Maggie "happy". She's very sensitive, dramatic, and easily upset.

I was remembering tonight.....our house is super small. For a few months, Mags went to bed at 630. We would literally go to bed then too! We didn't go to sleep, but we'd take snacks, Morgan, movies, homework, whatever we needed back to the bedroom and stay there! We didn't dare come back down the hall for fear of waking Mags. It was terrible, but we made it through! Now look at us....med free and a baby eating everything under the sun. :) sorry about the trip down memory lane, lol.

Jul 17, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I just looked at your info above the pic. How did they determine she got migranes? I'm asking bc I honestly had the thought "what if Maggie has headaches, how would I know" today. She screams bloody murder in the car a lot of the time and I just wonder if there's a reason besides personality.
Jul 17, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
We waited on the endoscopy until Elyse was about 8 mos old. Her reflux was severe enough for the first 4-5 mos that she had many ALTEs and was hospitalized twice due to reflux(not counting her NICU time). But she was on meds since 6 weeks old, so we waited on the endoscopy until she was older, and then we were able to see that the meds were working and she did not have inflamation and her biopsies came back normal. At that point in time she was still vomiting ALL the TIME and ate very few foods. Her pH probe the next week showed excessive reflux as well, BUT many of her refluxing episodes were not acidic enough to be termed "acid reflux", it was non-acid reflux. So, though uncomfortable, a lot of her reflux was not the type to cause damage. i don't think i answered your question, i just wanted to let you know that while my dd's reflux was pretty severe for a while, she still has not shown any damage from it. :)
Jul 17, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I agree - consider cutting out foods for a while and see how she does. We got to the point where Sebastian was tolerating absolutely nothing (even sweet potatoes and pears, which he had been on for months). Everything made him scream, made his reflux worse, gave him diarrhea, etc...so we finally said enough. (Interestingly, it was me who suggested this to the GI, who is content just 1)NEVER giving me complete blood test results...still waiting on those) and 2) passing me over to allergy so someone else can worry about us.) We have been off food for about 48 hours and so far, so good. I have seen virtually NO reflux (well, some at night, but you can't have everything), and the screaming is going waaaayyyy down. Sebastian's sleep is still in the toilet, but it is certainly better than waking every 30 minutes!

So maybe cut out food if you can for at least a month or so and give her body some time to heal. I would push for the scope, too. Then you'll know what you are dealing with in her GI tract...if there is damage or inflammation, things will jsut worse and worse, like they did for us.

Hope your beautiful little mama feels better ASAP.
Jul 17, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
What is wrong with me? Not five minutes after I posted my response ot you, Sebastian woke up 30 minutes into his nap crying...when I went up there, he was refluxing like crazy. Sigh. Looks like I jinxed myself! I also forgot to write a disclaimer and tell you I am not a doctor and to follow your ped's advice!
Jul 17, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I agree with trying to split the dose, so she has the meds in her system all day. I can't remember how long she's been on the Prevacid, but it takes anywhere from 2 to 6 weeks to see improvement. I'm wondering if the GI would be willing to up her dose to 15 mg - 10.5 mg is a little lower than a lot of the babies on here, but it's not uncommon for the doctor to try as low a dosage as possible at first. The Prevacid isn't likely going to reduce the refluxing - just the pain. Hang in there!
Jul 17, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
We always had to split the dose with my lo. It took a good 2 weeks for the prevacid to work though. She could have food allergies/intolerance. I would try the elimination diet to see if that helps.
Check with your
doctor first!