Posted By Posting
Jul 16, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Endoscopy today
Mathias had his endoscopy today. He did pretty well given that he was going into it with a temperature. He's sick but just a temp, no other signs of illness, and since all involved were okay with it we decided to go ahead. The GI found stuff that we weren't expecting. His stomach is a mess. There was a bunch of bile that shouldn't have been there and quite a few erosions. We don't yet have a reason for why there is so much bile in his tummy but the erosions explain his stomach pain. The GI also found some swelling at the top of the esophagus that made her a bit suspicious so we have to wait for the biopsy results to rule out EE. There is also a bunch of lab work that we have to wait for. His meds have been changed but we have to wait for the pharmacy to order one of them. What a pain. The temperature is still here but I am hoping that he sleeps better tonight. Libby
Jul 16, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh poor thing, well i am glad the endo caught it, he is on his way to being better in no time!
Jul 16, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Poor little guy! I hope the meds will help him to feel better soon! ((HUGS))
Jul 17, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Poor guy! I hope his new meds help him to feel better and I hope you get answers soon!
Jul 17, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Well, that does explain his tummy pain! I hope that the meds help and that the bloodwork either points to some answers or is clean. Thinking of you guys! thanks for updating. -Sarah
Jul 17, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Has he had a lower GI to rule out colon/intestinal problems? from out horrid experience with Elyse, i know that intestinal issues cause bile backup in the stomach
Jul 17, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi there. I am glad you had the scope, but I am so sorry that you got these results. I am hoping his esophagus is just inflamed and not subjected to EE. Chances are good that it is the former....so I am keepin gmy fingers crossed for you. Please keep us posted.
Jul 17, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I'll be praying the new meds help him to be more comfortable and that his doctors can find an explanation for the erosions. I'm so sorry this is what they found. :(
Jul 17, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I'm sorry to hear that it wasn't clear - I hope that you are able to get answers soon. Keeping him in my prayers.
Jul 17, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
It's hard to put them through it but now that you know, you can act. I hope he feels better soon.
Check with your
doctor first!