Posted By Posting
Jul 15, 2008
soik2000
son not sleeping
Hi, I posted a while back about if I should have my son scoped or not. Let me tell you a little about his situation. My son was born 10 pounds 8 oz. big boy! For two months he screamed and cried non stop and did not gain any weight. We tried Nutramigen did not work. Started seeing a Gi in Feb started on Neocate and prevacid. Things were going really well until two weeks ago. I know he is teething so I am sure that is not helping, we started solids and he did fine with sweet pots and bananas, and rice cereal. Tried oatmeal things got really bad. He had not slept more than an 1 1/2 hours for the last week. Getting him to sleep he stiffens his whole body and just tosses and turns. I was able to get an appointment for this friday and I want to be prepared. My mother in law how is in town and staying with us seems to think he is just teething and nothing more to it, (her son did that when he was a baby and he was fine). Because he is a big boy now at seven months 23 lb and 27 inches the dr seem to think they the problems will work them selves out, here is my problem I have a great ppo insurance plan that I can just pay the $25 co pay for all of his visits, I will be losing this insurance at the end of the year 80/20 plan and I see this new insurance as a great way to rack up some serious bills if he continues down this path. Let me run this plan by you and tell me what you think. Is he too young for allergy testing? thinking of getting this process started. Ph probe? I don't just want to keep upping his meds without info. currently 15mg of prevacid and 3ml of zantac. plus as needed 3ml of carafate. Scope? not sure what this will tell? Sorry so long. do you think These are the test I should request? anything I am missing. Thanks! Jennifer mom to nate 12/4/07
Jul 15, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Hi! Katie got way worse after she started solids and sitting up. She had been horrible and then one day she got so much better that we thought she had just grown out of it. She went from crying all day to laughing and playing happily back to crying all day. Katie is a non-eater and I believe that her lack of weight gain over 3 months is the only reason anyone took me seriously that she wasn't doing well and there are babies who eat to try to soothe the pain so your son might be one of them. Katie also cannot take Zantac as it gives her migraines which is of course fun with an 8 mo. old. I can't offer advice on Ph probe cause we had/have active vomit/reflux that we can see and of course clean up. I would advise you to go with your gut; you know your son better than anyone else does. At one point we thought Katie was teething as it was perfect timing but when we took her in no teeth and a red throat from reflux so a dr. appt. is a good idea. I would suggest seeing a gasterologist if you believe it is not teething; our pedi. didn't think our dd was that sick but the GI started ordering tests immediately while our pedi just kept upping her meds. Good luck! I know you will get other moms to weigh in so keep us posted!
Jul 15, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hello! I'm very sorry to hear about your little man! (I have a big boy, too!). First, he is NOT too young for allergy testing. We had my son tested at 10.5 weeks, 5 months, and six months, and you can see from my signature that the testing worked...HOWEVER, ask for RAST testing only. Sebastian tested negative to every single thing but eggs on the skin testing, but the blood test confirmed all other allergies twice. The skin test is just too unreliable in young children.

My son had many similar problems. He was sick on every formula befor eneocate, and he doesn't even tolerate that one all that well (he vomits a full bottle at night several times a week.) . He has been a screaming, nonsleeping, miserable nightmare (my POOR baby) since we trialed bananas in May. He got hives and then endured vomiting and diarrhea for a full week. My son never recovered. He had been eating his only two "safe" foods, but for weeks, he has barely tolerated them. We had him scoped 2.5 weeks ago and found that he has severe reflux and an inflamed stomach and esophagus. He has many lymphocytes in his GI tract. Our allergist thinks these are the result of a bad food reaction that never healed; our GI has no clue (as usual). He is now off all solids until further notice (probably til after his first birthday). Your son's symptoms sounds similar to Sebastian. Honestly, I would have him tested for allergies ASAP, and I would look into a scope. If we hadn't had ours, I would have not known why my son was so miserable...please let me know if I can answer any questions for you.
Jul 15, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
If you want to be really sure, get a scope done with biopsies. That is the most reliable test. Easier said than done. I was a basket case when they scoped my son.

RAST tests come back with false positives often and my allergist and ped have said that skin tests are more reliable. I think it really depends on the allergy as to which test detects it best. You can go on the food allergy websites for more info. I belong to kidswithfoodallergies.org and foodallergy.org. I know one, if not both, charge for membership but I have received good info from both.

Good luck and keep us updated. ~Ronya
Jul 15, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
These are just my opinions....I wouldn't do the allergy testing unless you think there is a specific food that might be causing trouble. Maybe the endoscopy and or the pH probe. My ped started with an upper GI and a pH probe. We never had to do the endo. but plenty have. I would start with the less invasive ones.

Just checking...are you doing the prevacid on an empty stomach? I know that's really important. A lot of moms also find that splitting the dose between am and pm helps too. Kids metabolize the meds quicker so they don't always last throughout the day. Teething does make reflux flare so it is possible that the teething is at least part of the problem. Hugs to you!

Check with your
doctor first!