Posted By Posting
Jul 15, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Aubrey is finally getting Behavior Therapy
The mental behavior therapist called me this morning and she is coming out Thursday afternoon to evaluate Aubrey and see what we can come up with. I am so ready for some help w/ her attitude. It seems nothing we do phases her. She is still so stubborn we can get her to sign or say the word drink or thirsty or cup-nadda. In fact, in her own 18mo ways she "changes the subject" when we won't give it to her. Both of her therapists have seen this and agree we are going to need extra help. I am excited for an outsiders input. J
Jul 15, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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I hope the therapy works!!!
Jul 15, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Sounds cool! You can pass some tips over to me, lol.
Jul 15, 2008
lanymama
Mom to Eddie 1/07 and Nicholas 6/08. Eddie allergic and refluxer now on cow's milk!!!! Nicholas also a refluxer on prevacid and breast milk. Mom on elimination diet AGAIN!!
That is great news, behavior therapist I think help so much. Let us know of any good tips, Eddie has become a tantrum machine! Hang in there and good luck with ds today Elaine
Jul 15, 2008
stickybean
glad you are getting the help you have asked for! Let us know
Jul 15, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Nothing like a toddler to let you know that you are not in charge, huh? LOL They can be soooooooo stubborn sometimes, I hope the therapist can help!
Jul 15, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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I remmember back in my first year of college, i worked with autistic kids (well, I still do!!) and the program I worked for had a book that was required reading for all the parents and employees. It is for ALL kids, not geared towards autism, and i remember it had some really good tips. it is called SOS, Help for Parents. HTH (hope therapy helps) :)
Jul 15, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I'm so curious to see what they tell you. Sebastian has a mind of his own, too, so I can only imagine what is in store for me. Keep us posted!
Check with your
doctor first!