Posted By Posting
Jul 15, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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OT-sad day
So I was at work today, my mom taking care of Elyse, and i get the call that her best friend passed away. My brother found him. He didn't show up for work so my brother went to see if he was okay and found him in bed, dead. By the time my mom and elyse got there, not knowing he had passed away (they followed a few minutes behind because she was grabbing baby stuff, and wanted to be there because she knew something was wrong), the ambulance people were already leaving (without him) and the cops were there asking questions. My poor mom was sitting outside with Elyse, sobbing of course, of her 4 best friends in the world this was the 3rd to pass away. This was a very VERY good family friend, who we considered family. His death is so far unexplained but we think it was his heart. he had a mild heart attack 4 years ago. He was 55. I don't know how my mom is going to make it through this. He is the oldest of 6 kids, and the third to pass away, before their parents. it is so, so sad. Please pray for our family and keep us in your thoughts! i sat with her for 8 hours today and I am completely drained but I can't sleep.
Jul 15, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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*sigh* I could NOT sleep. At 3 am I finally got up and I have been cleaning and paying bills. I am one of those people who has to keep busy in the midst of trauma. (Everyone says I was the only person they knew who was BUSY on strict bedrest!) Please send me wakeful vibes today as I care for my daughter and feed a mass of people the next few days.
Jul 15, 2008
amber f
I'm so sorry for your families loss. I'll be thinking of you in the next days to come. (((HUGS)))
Jul 15, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
God, that is really horrible. I am so sorry. Your poor mom, and her friend's poor parents. I feel terrible for them having lost three children. I don't even want to think about how horrible that must be. I'm thinking of you and your family.
Jul 15, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Oh Sharon...I am so sorry!! I will keep you all in my prayers. I really hope you can get SOME rest...take care girl.
Jul 15, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
I am so sorry for you and your family! Hopefully having everyone around will help to keep you busy. I am like you too, I find mindless tasks to do just to keep my mind occupied when I am stressed. I'll be thinking of you and your family!
Jul 15, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
That's awful! (((hugs))) to you and I will say a prayer for your mom. It's terrible when someone close passes away, especially so unexpectedly. How are you feeling this morning? I know what you're saying about keeping busy, I'll keep you in my prayers this week as well as you balance all the things you'll be doing.
Jul 15, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
I will be thinking of you and your mom. Loss especially unexplained loss just seems so unfair. I hope your day goes okay. Libby
Jul 15, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
How incredibly sad for your mom and for his family, especially because it was unexpected. I'll keep all of them in my prayers. Take care.
Jul 15, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Sharon, so sorry for the loss. You all will be in our prayers.
Check with your
doctor first!