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Jul 14, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
OT - Back from SA
We had a great trip to Sea World. MollyBeth (Cooper's mom) - we live just north of Austin. Now it's time to get ready for M's endoscopy on Wednesday. I hope we get some answers b/c it is so hard to hear M always say - "my tummy hurts". We have to see the neuro tomorrow from the "seizure" that happened recently. My worry now is that he is coming down with something. He just didn't seem well tonight. Libby
Jul 14, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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I'm glad that you had fun at Sea World. I hope the M stays well enough for the scope on Wednesday and that it can provide you with some answers. -Sarah
Jul 15, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I love Austin. We really miss it at times. We moved about a year ago now, right after getting pregnant with Cooper at Texas Fert. Center in Austin. What town do y'all live in, if you want to share. I know the area pretty well. I'm glad yall had fun at Sea World. I hope he is ok and the scope goes well. Will you be having it done in Austin? I miss all my Austin docs. Can you tell? LOL. Cooper had a seizure in April, but we didn't go to a nuero. i hope you can get it all figured out.
Jul 15, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Wow, what a small world...my brother lives in north Austin. I love going down there to visit...so much better than Dallas :-)
Jul 15, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Donnessa - I was going to guess that you were in the central TX area or had at least visited during the spring. :)
Jul 15, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
We recently moved just west of Leander but still in Travis county. We used to live out near Mansfield Dam but got tired of the burbs and bought some land out this way. I wish houses in town weren't so darn pricey b/c I do like it near Hyde Park but then there is something relaxing being out this far. Libby
Check with your
doctor first!