Posted By Posting
Jul 13, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
OT sort of: Cooper's pics and recipes
Hey guys, I just wanted to share Cooper's 6mo pics, but I'm not sure how to post them, but you can check them out on our blog. I also wanted to let you know that I have started to add reflux/allergy friendly recipes to my blog. I stole the idea from Erica. It has been fun trying to create new recipes we can all enjoy. I am working on a soup as we speak. I'm taking it to a church social, so lets hope it turns out. It is kind of a soup contest. You put $ in the bucket for the soup you like the best. The one w/ the most money wins. And the money helps pay for kids to go to camp. It is lots of fun. I am making two recipes(one is not reflux friendly, it is tortilla soup, so yummy) and hoping I do well. I have quite the competitive spirit especially when it comes to cooking. Anywho here the link to the blog Let me know if you try any of the recipes how they turn out.
Jul 13, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Very cute pics!!! Hoping when you have some time you can share about ciro. visit. Totally understand not having time though!! :) Might try the chicken nuggets as husband is allergic to corn so those sound like they might work!
Jul 13, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Thanks for the ideas and CUTE PICS :)
Jul 13, 2008
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
So adorable! He smiles so nice and big :) It's like he smiles with his whole body!! Thanks for sharing!
Jul 13, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Thanks for the recipes. They sound yummy. I have a SIL with Celiacs and i'll pass them along to her as well. I love his photos. I must say that Coy was not sitting up unsupported @ that age so Cooper is doing amazing! What a big beautiful boy!
Jul 13, 2008
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
So cute! He's growing up so fast, he looks so much bigger! And I agree with everyone else about that smile. What a cutie! Love the recipes, too. I am glad you're feeling good on the elemination diet and that it's working for Cooper! I love it that Rice Chex are gluten free now, that makes a lot of things easier!
Jul 14, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Cooper is sooo handsome!!!! What a sweetie. Good luck with the soup contest. :)
Check with your
doctor first!