Posted By Posting
Jul 12, 2008
Not sure if I am allowed to post this...
But I am just so proud of Joslyn. She is a miracle baby and she is reaching every single milestone so far. She turned 3 months on Friday and she is our little precious. If it is wrong for me to post this I am sorry.....But I am just a proud mommy. The video was taken Friday night. (I hope this works) Jacky
Jul 12, 2008
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
Oh my goodness, she is soooo cute!!!! Thanks for sharing, I love it when people post videos. Post as many as you want, as far as I know that's just fine (and we all love seeing them!) What a sweetheart, she's got such beautiful eyes and you can just see how sweet and happy she is. Happy 3 month birthday, Joslyn!
Jul 12, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
she is adorable! that is amazing that she holds her head up so well for tummy time. coy hated it because it worsened his reflux terribly. i'm so glad that she is doing so well! what a great daddy too! videos are awesome! did she have a swallow study @ 5 days to get the silent reflux diagnosis?
Jul 12, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
She is one of the CUTEST babies I have ever seen! I have a miracle baby too, it is AMAZING watching them grow and develop!
Jul 12, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
How totally adorable!!!!!!!
Jul 12, 2008
thanks everyone! Yes when she was at scottish rite (3 days old) they did a verium swallow test. (dont know it I spelt that right.) We have a youtube account now, so I can post them now. She likes tummy time most of the time but sometimes can only stand it for a few minutes. Thanks again! Jacky
Jul 12, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Very cute! Katie HATED tummy time and I think she knew that at birth because she came home from the hospital holding her head up. Happy Birthday Joslyn!!!
Jul 12, 2008
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
She's just darling! Keira goes to Scottish Rite in a couple weeks for physical therapy since the Babies Can't Wait program didn't work out. She's just now starting to be ok w/ tummy time.
Jul 12, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
LOL if that's not allowed, I'm sure most of my posts aren't. She is precious. I can totally understand why you're so proud.
Jul 12, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
She's simply adorable.
Jul 12, 2008
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
No it's fine to post. She is so cute. I love the laughing.... :)
Jul 12, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
I love watching video. She is absolutely adorable!!
Jul 12, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Oh I loved it!!! Glad you posted it - we can always use a break to watch a baby smiling, cooing and laughing!
Jul 13, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
She is so cute. That is wonderful that she is thriving so well.
Check with your
doctor first!