Posted By Posting
Jul 10, 2008
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Maybe not reflux related? I don't know anymore....
So I haven't posted in a bit because Jazzy is cycling thru the "bad phase" now. It's been 2 weeks of diarrhea, irritability, hell etc... This is her pattern though, then it's constipation for months if I don't give her motilium. The thing is I don't think it's reflux related. She wants to eat, but it mostly goes thru her. She's not hiccuping, chewing her fingers etc... She has A LOT of gas though............................................................................ She's getting an endoscope/colonoscopy in Aug. but I don't know if I can wait and watch her go thru this anymore. Do your babies have these cycles? Or am I looking at possible Crohn's, celiacs, ulcerative colitis diagnosis?
Jul 10, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I really can't help...just wanted to say that I've thought of you! Hugs!
Jul 10, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hmmm..I really son't know either, but I wanted to just weigh in and tell you I'm sorry! Sebastian is crappy now, too. What is up with these kids???
Jul 10, 2008
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
What about IBS? My middle daughter went through a spell of constipation then diarrhea and she is the gas queen!! She can clear a room like a grown man!! :) Her GI started her on a med for IBS and it does seem to help. She just takes it as needed but since school has been out she has only needed it once. Not sure how they really diagnose IBS in kids though. HUGS!
Check with your
doctor first!