Posted By Posting
Jul 10, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
is this okay?
Don't be jealous, Audrey sleeps A LOT, through the night even- the reason why i say don't be jealous is b/c i don't sleep through the night; little emi monster does not sleep through the night therefore i don't either lol

mostly when i mean through the night i mean like 4 or 5 hours, A wakes up to eat then falls right back to sleep while nursing. But two nights in a row she has slept through 8+ hours. i had to wake her up this morning at 8:30 and she still wasn't interested in eating, but she finally did. She is 2 weeks old is it okay for her to sleep that long and not be interested in eating? should i set an alarm to wake up to feed her? she gets enough dirty diapers so should i even be concerned?

oh yeah and you will never believe this, poor thing has thrush! wth!

one more thing, what do you think about asking for zantac as a preventative measure for audrey? i know she is refluxing, mostly silent but yesterday she spit up twice and threw up on me last night. she does not seem in pain but i know with emi's history, it can turn painful.
Jul 10, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I always err on the side of caution because of Jedd unDXed heart condition. I would keep an eye on her weight. As long as she is gaining fine without feeds at night, then she should be fine. With Jedd I kept a log of OZ taken but you can't do that while breastfeeding.....LOL
Jul 10, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Back when Q was that young and younger, I didn't know that they HAD to eat all the time. I was told that the baby will wake up when they are hungry. But Quinn slept 7-8 hours every night too. when she was 3 months old, the doc asked me about nights and I said they are fine and that she sleeps all the time and she about had a heart attack and told me that as a newborn, she should eat twice a night. At three months: at least once. But Quinn turned out to be fine. The only thing is that I think it might have been a sign of her hypotonia. But we didn't know she had it until she was way older. I think that if Audrey is not in any pain, maybe it is ok to see how things go. On the other hand, if the reason she is not eating is caused by hypotonia, she could have a very diminished sense of pain. I know you said that you talked with your doc about it. at what point did he/she say that it would start to be concerning. How does she do with suckling? Does she appear to be weak and slow at it? You said she has thrush, perhaps it is because she is not really swallowing it fast enough? I hope you can get to the bottom of it! -Sarah
Jul 10, 2008
amber f
Thrush is so common in infants. I would NOT wake her up to eat. The doctors tell you too but I wouldn't. Unless she starts to lose. Consider yourself blessed! I hope Emi starts to sleep for you. This JMO but I think a tiny infant doesn't starve themselves until they have reflux pain and develop an adversion. But at two weeks I don't think that is it. Also a lot of babies reflux and spit up without pain. So I wouldn't do any meds until it is causing her pain. You know the signs (arching etc.) you've been through it. I'd wait it out a little while. I often wondered about a daycare kid needing meds because he came after Nolan and spits up a lot and silent refluxes but he is not in pain. But I am just paranoid because of Nolan. But spit up is normal and so is doing a little refluxing. Is her spit up acid smelling or does she have bad breath? That is a difference I have learned between Nolan and the dc baby. Nolan's spit up stinks. HTH!
Jul 10, 2008
amber f
Sorry after reading what Sarah put I didn't know about the Hypotonia so that might be a factor.
Jul 10, 2008
emmakins
Wendy
daughter Emma born 7/25/07
emma slept like a champ at first too. i think that was her way of dealing with the pain - dont eat and sleep as much as possible. we went for 1 month check and we told the dr how much she slept and that next weekend they put us on a schedule of feed every 2 hours because she wasn't gaining quick enough. just watch the weight. emma was never an archer. and most drs didnt think reflux was her problem because she didnt arch.
Jul 10, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I ended up doin gthe sam ething as Wendy's Dr told her to do. But i didi it on my own when I realized form my schedule that Jedd was NOT eating anythign at all really. I wa lucky to get 12oz of 20 cal. formula in h im in a 24 hour period...yes, he was that bad from his heart. His defect was not caught until he was 40 days old. And even at that point we had to wait until the next week for th eCardio. apt to find aout whether or not it was a innocent murmur or not. Sadly, it wasn't...:'(

I ahd MANY dr. and nurse tell me that if I had let Jedd just go ahead and sleep whenever he wanted to he would have come close to starving to death...so IMO I woudln't let ababy sleep. I would wake to feed them every 2 hoursunless the ped. is OK with NOT doing that.
Jul 10, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
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I would probably call her pedi and see what they recommend. Every doctor is different. I would also hold off on the meds until you see if causing her pain/discomfort.
Jul 10, 2008
amber f
You gals have all seen the worst case scenerios. Lots of normal, healthy babies are born everyday. I would discuss everything with your pedi but not jump to any conclusions. Sleeping long stretches at night can be normal. I have heard of tons of babies (including my niece) who have slept 5-8 hours a night since they come home from the hospital. Some people are just that lucky. But then they are feeding them a lot during the day to make up for it. So if she is nursing good during the day I wouldn't be too worried yet. THIS IS JUST MY OPINION but you can't think that because she is a good sleeper that heart problems or any problems are to blame. If she has no other symptoms and the docs say it is okay I'd just enjoy the fact that she is sleeping so well and get some sleep myself. Kat follow your gut!
Jul 10, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Adam was a GREAT sleeper from day one. He had AR but was never dx with it...he seemed to be a "happy spitter". My ped was never concerned with him sleeping so good at night...he gained on a regular basis and started out pretty hefty, lol.

I think I would hold off on the zantac as well...but that is easier said than done, lol. I am sorry Emi isn't sleeping so good. Nate gives me like 2 good nights and then 3-4 bad ones in a row. Let us know what the ped says about the sleeping...I am interested in hearing what they say. My neighbor has twins who were born 3 weeks early...her ped says a 5 hour stretch is perfectly fine...they are BF. Take care Kat...thanks for the update :)

Jul 10, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Aubrey did the same thing. She was born sleeping from 9pm-4am. I at first did not worry, but later on did learn it can be a sign of reflux. OF course Aubrey also has hypotonia. I agree w/ Abby's mom. I would call the pedi and see what they say. Good luck!
Jul 10, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Amber, i agree with you. If she is eating well during the day to make up for the calories (as was Quinn) I wouldn't worry too much, which is why I didn't worry too much either. The only thing I think of it is that it was probably a sign of her hypotonia, but we didn't find out about that until later on. It is always better to err on the side of caution, but that could also mean just to keep a close eye on it and if it is really concerning you, look into what the cause could be, talk to your pediatrician. i too think you should follow your gut, Kat. -Sarah
Jul 10, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I don't know Kat. I'd be kind of concerned about her staying hydrated. At her age, I'd think she needs more than that but I don't know. I remember one time being told not to let Mags go longer than a certain length of time without nursing but I can't remember how long. I'd check with the ped's office. Especially since it's almost the weekend.
Jul 10, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Of my two refluxers one was a good sleeper and one wasn't so it is hard to say. At two weeks most breastfed babies need to be waking up for a feeding. Did/does she have jaundice? Sometimes that makes them too sleepy to eat. I am only asking because we had that problem with Melina. UGH.

The twins were sleepy girls during the day to the extent that we had to wet washcloth their faces to get them to eat. Poor things. ;)

I would talk with your DR about the meds for Audrey. It is hard not to worry when you have dealt with a refluxer before but it may be that Audrey will be fine or be a happy spitter. My non-refluxer did spit up as a baby but it was just average baby spitting up so I will be praying that Audrey has escaped the reflux and other issues. :)

HTH~ Let us know what you find out.
Jul 10, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
I'm so glad you have a sleeper! I'd say let the kid sleep and hold off on the Zantac of you can. Mild reflux is common in newborns..I'd wait and see if there are other symproms like back arching or fussing during feedings before giving meds. Zantac has aluminum it in so if we can avoid putting heavy metals in our little ones we may as well. i can see how you want to help her be pain free but at this point it doesn't sound like she is in pain..That's great!
Check with your
doctor first!