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Jul 10, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
Hi Ladies- I need some ideas
Sorry I've been MIA for awhile now. We've been out of town, going to appointments and dh is working from home a lot now so I don't get access to the computer. Once he's done working - he plays computer games in the evening. :( Anyways- yesterday Keira woke up and when I went in her room she was attempting to take herself out of her ar pillow. So now we have no choice but to wean her off it. The issues are these- she's always slept elevated and she had the car seat or the ar pillow which both make you feel kind of confined, and she's always associated the ar pillow for months now with sleep and laying flat on her back with play time. So when I put her down in her crib even though she's tired-she thinks it's time to play in her crib. Yesterday she managed to sleep a half hour in her crib flat but then woke up crying as it's still new to her. She likes that "held in" feeling. I'm not comfy w/ the sleep positioner as Keira is too wiggly and would find a way to scoot down from it. We call her Houdini. I don't know whether to let her cry it out till she gets use to the crib or what. If I elevate it she'd just roll right into the side bars and she moves all around in that crib so this is so frustrating. Do babies go all over the crib at night? Ugh....yesterday was awful. She only got 2 half hour naps and she was a bear by the end of the day. I put her back in her ar pillow for night time and kept a close eye on her till morning and woke up before she did so I could make sure she didn't try and get out of it. How long did it take some of you to wean your kids off a tucker sling, elevation, ar pillow? DH seems to think this is a piece of cake but IT'S NOT!!! TIA! ;)
Jul 10, 2008
amber f
The only suggestion I have is to but a blanket or a pillow under the crib mattress so it is elevated only slightly and then in a week or so of her sleeping like that pull that out. That way she doesn't have to go from the high elevation of an ar pillow to nothing. HTH!
Jul 10, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Halley likes to snuggle like that too. What we did was elevate her mattress with some pillows and then placed a couple of rolled up beach towels in a U shape under her sheet to form a little nest for her sleep in. HTH
Jul 10, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Oh, I so feel for you right now. I totally remember this transition. Nate went from sleeping way elevated in a cradle to sleeping in his swing...then on to an elevated mattress just like Halley's mom talks about (I got the idea from her, lol).

The thing with Nate is that he is ALL over the darn crib...he would start to roll to the bottom and his feet would be elevated instead...not a good thing. It was a few weeks before he got used to very slight elevation...I'm talkin just a blanket under part of the mattress. He would get freaked out I'm sure since he was so used to being snuggled up in a little "nest". Now, he sleeps on an adult size pillow and pretty much stays in one area. I would try what Donessa suggested...it really works out great (till Nate started to stand and try to climb out on the high side, lol)

Jul 10, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
Hi At about 7 months old Seamus was sleeping on a very thin down pillow which kept him in place on his Tucker wedge. He stopped using the sling at 5 months because he was trying to turn over and it woke him up.Like Keira, he enjoyed being cradled..At 7 months he started sitting up in his sleep, which led to him flopping off the wedge. I transitioned him to just a down pillow under his torso with his face popping out of the top so he could breathe in case he rolled over. I am so hyper aware of him that I wasn't worried.. Then I started positioning him on his left side on the pillow, then I finally removed the pillow all together. He starts out sleeping on his left side because the GI said this position is the best for prevention of reflux after feeding if you can't hold them upright. I think having a lovie/blankie helped him with the transitions. We are working on the crib thing right now. We introduced the crib, with the side off, facing our family bed...After a week I put the side back on and began to do CIO. I think that I should have waited way longer for him to get comfortable with the crib. He was all over the crib flopping around. I think it was weird for him to flop over and not have a warm cuddling mama or papa there but instead be greeted by a crib bumper. When we got near the crib during the day he would tremble with fear. After a week of sleep training I took the side back off and pushed it against our bed again. It has taken 10 days for him to be comfortable with the crib again. I am going slowly, just giving him naps in the crib and beginning the evening there. It makes me comfortable to know that he is safe when he is napping or starting out the night. He has the tendency to wake up and begin crawling immediately for the edge of our bed! I haven't tried elevating the crib mattress becauseGood luck! I don't want him to crawl out. I like Amber's idea of decreasing elevation in the crib. It is really tricky.
Jul 10, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
Hi At about 7 months old Seamus was sleeping on a very thin down pillow which kept him in place on his Tucker wedge. He stopped using the sling at 5 months because he was trying to turn over and it woke him up.Like Keira, he enjoyed being cradled..At 7 months he started sitting up in his sleep, which led to him flopping off the wedge. I transitioned him to just a down pillow under his torso with his face popping out of the top so he could breathe in case he rolled over. I am so hyper aware of him that I wasn't worried.. Then I started positioning him on his left side on the pillow, then I finally removed the pillow all together. He starts out sleeping on his left side because the GI said this position is the best for prevention of reflux after feeding if you can't hold them upright. I think having a lovie/blankie helped him with the transitions. We are working on the crib thing right now. We introduced the crib, with the side off, facing our family bed...After a week I put the side back on and began to do CIO. I think that I should have waited way longer for him to get comfortable with the crib. He was all over the crib flopping around. I think it was weird for him to flop over and not have a warm cuddling mama or papa there but instead be greeted by a crib bumper. When we got near the crib during the day he would tremble with fear. After a week of sleep training I took the side back off and pushed it against our bed again. It has taken 10 days for him to be comfortable with the crib again. I am going slowly, just giving him naps in the crib and beginning the evening there. It makes me comfortable to know that he is safe when he is napping or starting out the night. He has the tendency to wake up and begin crawling immediately for the edge of our bed! I haven't tried elevating the crib mattress becauseGood luck! I don't want him to crawl out. I like Amber's idea of decreasing elevation in the crib. It is really tricky.
Jul 10, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
Thanks ladies- before I got back on here she had her morning nap. She played in her crib for about 15 mins and then was out. She woke up an hour later and I went to get her. She had her butt against the side rail with her legs sticking up. An interesting position but she had a big grin on her face.... wild. The only thing that freaks me out about having pillows and such in there is just that she could suffocate? I'm pretty over paranoid I guess.
Jul 10, 2008
amber f
I know that feeling, that is why I only put one under the matress. Not under the sheet. But actually the SIDS risk is almost nonexisitant after 6 months.
Jul 10, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
Does Nolan scoot to the end of the crib? I have a little elevation thing I got before I knew anything else to try so I could always use that. It's just a wedge that goes under the sheet or bed and it doesn't move once you put it there.
Jul 10, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
I know your worries. I just now put a regular pillow in his crib...he is 16 months old.

I used to do this....I would make a nice little "nest" with rolled up towels and blankets, then I would put a sheet on top of it...I would tuck it under and secure it with baby safety pins (silly, I know) but it worked great. There was no way of him getting "under" any of the blankets, it was all secured underneath the sheet. Now...don't let me tell ya how much of a PAIN it was to change his sheets...especially in the middle of the night :)

Jul 10, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Mags crib has always been slightly elevated. She's all over the place. In the past we would have to go in occ. and scooch her back into place but it wasn't a big deal. Any thoughts on sleeping on her belly. Maggie lays on her belly and just snuggles right in. (knock on wood)
Jul 10, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
I can't help with the incline issue as our pedi only just suggested the Tucker Sling (after dealing with refulx for 8 months you would think he might have mentioned it sooner!) and when Katie was really tiny I bought the co-sleeper because it had an incline but I would check on her in the middle of the night and she would either be hanging off of it head down or her little nose would be pressed up against the side and I was scared she would sufficate. We tried the incline pillow under the sheet and she would just roll to the side of the crib so I just started keeping her upright for the 30 minutes after she ate (exhausting yes). She is often all over the crib and can somehow get out of those sleep positioners and will end up completely opposite of where we put her. I have no words of wisdom, just wanted you to know that my lo does roll all over the crib too.
Jul 10, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
Didn't read all the responses (you got a LOT!) but for Elyse when she outgrew the tucker sling (meaning she was getting out of it on her own!!!) we had to go cold turkey with no elevation bc making a nest did not work for her (way too active). There is a tucker sling for older kids that has a 5-point harness so they can't get out. Elyse still goes all over the crib. We had to put a bumper in because she would get her legs and arms out of the slats and wake up, or bonk her head. We held her up for the 30 minutes for awhile, then slowly started just laying her down and she is fine now! It did take awhile for her to get used to not being confined and she couldn't sleep just like keira.
Jul 10, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Sebastian never stood for the Tucker Sling...I long since sold it on eBay (got $86 bucks plus shipping for it!!!). I hadn't elevated him for weeks, but now that he is all crappy again, we are starting to try again. We lowered the mattress as much as we could and stuck one of our own pillows under it. It is enough to help, but not so much elevation that its dangerous...worth a try!
Check with your
doctor first!