Posted By Posting
Jul 08, 2008
Liz, mom to Donnie 12/2005
Surgery for Pyloric Stenosis at 5 weeks old
GERD since 4 weeks old
Colic until 13 weeks old
Delayed Gastric Emptying
Surgery for Tubes and Adenoidectomy at 14 months old
Anemic since 9 month check
Febrile Seizures
Speech Therapy
MEDS: Zyrtec, Nasonex, Xopenex,
Vitamins with iron, and back on Prevacid as of 12/2008
Blood test results
Well I got Donnie's blood test results back in on Friday, but we also left out to go to the cabin to camp all weekend so I haven't been able to post. His blood tests came back negative for PANDAS, thank goodness, but the ped said he definitely has to see the neurologist because it is an obvious tic. The thing is that he has been so much better with it this weekend, but it was really bad the day we saw the ped. It kind of comes and goes with its severity. Anyway, we consult with the neurologist on July 21 and will probably have another EEG and possibly a MRI of his brain. Thank you for all of the support, I feel a little relieved that his blood work came back normal, just hoping now the neurologist puts our minds at ease. -Liz
Jul 08, 2008
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
I don't know what Pandas is but I am glad Donny doesn't have it. I hope you get some answers soon. ~Ronya
Jul 08, 2008
amber f
That is so great he doesn't have PANDAS. I hope you can find out why he does it and it is something simple.
Jul 08, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Hi, I am out of the loop bc i was on vacation, but sounds like good news!
Jul 08, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
That is good news. I really hope the neuro dr can figure this all out. Thanks for the update...I love his new pic with the guitar...he is such a cutie :)
Jul 08, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hopefully it's nothing. Morgan still blinks a lot and it seems like just a nervous thing.
Jul 08, 2008
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
Overall sounds like good news! Hopefully the blinking is just a nervous thing like Melissa said, especially if he did so well while on vacation...
Jul 08, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Glad to hear it wasn't pandas. Hope you guys get it all figured out soon.
Jul 10, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
So sorry about what has been going on with Donnie. Hopefully they can figure it all out. My sister has torrette's syndrome. She just blinks repeatedly and does does something weird with her nose and mouth.. It's kind of funny because her son started doing it (he is about 20 months old now) but he saw his mom do it all the time and just wanted to copy her. It was NOT a tic like hers or Donnie's or anything though, he was just trying to copy. I'm really glad to hear that it was not PANDAS that Donnie has. -Sarah
Check with your
doctor first!