Posted By Posting
Jul 08, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Quick update on Elyse
Hi girls! We are back from vacation, I was away from PAGER for about 2 weeks and have not read even one post yet, I need to go to bed!! Elyse did pretty good driving for 10 hours plus stops! She drank horribly, averaging 9 ounces a day of formula with a little juice or water too (what amount are they supposed to drink at her age??? adjusted 11 mos now). We have been home one day and she drank 15 oz today so maybe it was an away from home thing. I am not freaking out or anything, I think she is trying to wean from the bottle.

Table foods are going much better, she won't take even a bite of baby food anymore. We are finding more things she is willing to eat. SHE IS SO STINKIN' INDEPENDENT!!! Also while on vacation I dropped her night dose of Zantac and she has slept thru every night since! Still needs the morning dose though, I skipped a day to see how it was and it was horrible. Dairy intro is still touch and go, last week I gave her a frozen gogurt and she ate most of it and then immediately threw up.

She is eating a little more fruit now, peaches, watermelon, plums so I am doing a no miralax trial now to see how she is....gotta run and get to bed!! Hope everyone is great, I will try to catch up a little tomorrow!
Jul 08, 2008
Glad to hear you had a great time. I think around that age mine were drinking an average of about 20 ozs either in the sippy or bottle. They started the independance too at this age.

Hopefully the fruit will help instead of the miralax. Have a good rest and glad you made it back safely.

Jul 08, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
So glad you are back and you had a nce time...I have been thinking about you. I think they always eat less while on least mine do. What good news about the night dose of zantac!! I think the fruit should definitely help her in place of the mirilax...especially the watermelon. Nice to have you back :)
Jul 08, 2008
amber f
It is good to hear from you. Glad the trip went pretty well. Yay on the Zantac decrease. Sorry the dairy is still touch and go. Nolan loves the frozen gogurts. Fruits will hopefully keep things moving.
Jul 08, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
I'm glad she did well in the car for that amount of time. We decided to fly for our vacation to avoid the car seat horror.I'm sure she drank less due to being on vacation. Probably too excieted to see new things. AT that age 16-24 ounces-usually around 18 on average.

i'm glad table food are going well. bummer about the yogurt! hopefully she'll be able to tolerate someday. yay on the zantac drop!
Jul 08, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
I am so glad you had a good time. We missed you!!!
Jul 08, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hey! I think my old ped told me 16-20oz. He said if it got below 15 she wouldn't get enough nourishment. I bet the low days were just bc she wasn't home.
Jul 08, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Glad you had fun! Sometimes Katie won't eat her baby food even if she is still hungry because she wants what I am eating so I will put some of her food on my plate and eat my food and feed her baby food off of my fork or spoon and she eats every bite! Of course I don't like the taste of her formula so if she doesn't eat all of her oats and it is left on my fork I have to hide gagging on it! :)
Jul 08, 2008
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
Good to have you back :) I couldn't imagine putting Lauren in a car for 10 hours...she's like Maggie, she just hates it after about 20 minutes. Lauren is actually doing really good at drinking her milk out of a sippy cup. I was worried when we switched off the bottle, but she is taking more on her "own terms" than she did from the bottle. We still have the bedtime bottle though...That's great that she's eating all those fruits too. I need to try more them with Lauren. They are just so expensive to watch her spit out...
Jul 08, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Welcome back, glad you had a good trip. I think changing there schedule throws the eating off. Hopefully she picks back up soon. Glad to hear she's doing good with table foods.
Jul 10, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Woo hooo!!! it sounds like Elyse is doing so well. I can't wait to meet you guys! -Sarah
Check with your
doctor first!