Posted By Posting
Jul 07, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Croup, AGAIN!!!!
Quinn has croup again, even though she is on pulmicort and xeoponex. UGH!!! i am not sure if it is actually croup, since croup is a virus, right? I think it is just her airways acting up again since she isn't too snotty in her nose, just in her throat and there is no sign of a fever. We go to see the pulmonologist next week. hopefully they can give us some other treatment options and especially be a little bit open about treating her sleep apnea. She has been coughing so much. poor lil booger. -Sarah
Jul 07, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
You can't use the phrase "can't catch a break" lightly with Q. She really can't! I'm sorry....poor baby!
Jul 07, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Ugh. I hate to hear that. HUGS!
Jul 07, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
I am soo sorry to hear that HUGS....Jedd was given a liquid steroid while he had croup. I was told NOT to use hiw albuteral nebulizer for it. Not sure why.
Jul 08, 2008
When Braddy had croup his cough sounded like a high pitch seal bark. He too would cough until he was gasping to catch his breath. I was told to do the Xoponex treatments every 3-4 hrs and he was put on a steriod. Yes it is a virus so an antibiotic will not cure it but you need the steriod to shrink the airway. Good luck with sleep if they put her on it. She will more than likely be wired especially in conjunction with the Xoponex and Pulmicort.

Praying for you guys faithfully. If you want me to put her back on the urgent prayer list please let me know. I will more than happy too. Sending love and hugs from NC. If I can judge the time difference I am going to call tomorrow. It will probably be around 1 pm eastern time. Carla

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