Posted By Posting
Jul 07, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
He has all these toys but...
He crawls like crazy after a crumb or a piece of grass. Why is this! A leaf could not possibly be more exciting than the $100s of toys he has. I swear, I'm going to have to start vacuuming 10x a day!
Jul 07, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
totally understand!
Jul 07, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Cooper is a clown! It's funny how kids like the simplest things after we spend tons of money on useless crap. Sebastian ignores half his toys but screams and screams if I tear the remote away from him. I have found something that REALLY works: if I don't want him to play with something (like my camera...however, really obviously dangerous things like cutlery and plastic bagsare exempt from this rule), I give it to him for a few days. Then he realizes it is not forbidden, and he doesn't care AS much. Not sure how you'd go about that with dirt and grass, though!!
Jul 07, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Katie LOVES to sit and pull the grass or play with a leaf for the longest time; with her toys 10 minutes and then she is bored with them. I bought new tennis shoes and the box they came in was the best thing ever! She also loves ds' old cell phone as she gets irritated when I am on the phone and she can't have it. I'm jealous that he is crawling already! Katie is almost 9 months ( 1 more week) and not even pushing up onto hands and knees which really frustrates her!
Jul 07, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
gardening with Coy is a big NO-NO for me. everytime he sits in the grass he eats it, gags, then pukes. and yes, he has millions of toys out there with him and he's on a blanket too. he is also fond of the dog's strings and her bones... YUCK! so glad that he is crawling btw. that is really early!
Jul 07, 2008
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
oh I hear I ya! Lauren loves rocks and flowers. She saw me "dead-heading" my petunias about a week ago, now she pulls of the real flowers -- I have one side of my planter with no petals! I have also pulled numerous rocks from her mouth...All I do is wash her hands and feet!
Jul 07, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
LOL...sounds like Nate. He too (like Lauren) LOVES to try and eat rocks :)
Jul 08, 2008
An idea is one of the Swifter carpet flicks. I do vacuum every night b/c both babies are crawling now but during the day I use the Carpet flick. It is so handy and really does work. We have both berber carpet and very little I guess shag carpet. It picks up on both great. Also on the deck I have some indoor/outdoor carpet in Braddy's play area. I use the flick on it once a day too. Hope he can learn to overlook the little things soon.... yeah right. Braddy isn't really bad for putting things in his mouth but it never fails when he is in the sandbox before I know it he has put his hand in his mouth or through his hair. It isn't fun getting it out of the mouth.
Check with your
doctor first!