Posted By Posting
Jul 07, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Danie and everyone
Sorry I haven't been around. I'm trying to put some space between ourselves and the world of GERD. Sometimes I feel like I'm obsessed with finding an answer that just isn't there in regards to Rory's eating. So, I'm trying to focus more on HER, and not her "issue". :) I'm sure you all understand. Danie, thank you so much for thinking about us. I think of you and Natie Bear often, as well as everyone else. It's so hard to not hang out here...You are all dear friends. I was trying not to make a dramatic goodbye like I have done in the past. lol....just a temporary reprieve, since it doesn't look like we'll be outgrowing anything anytime soon. :( I'll still pop by to check up on everyone. Good luck. HUGS.
Jul 07, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
I totally understand, but we miss you!!!
Jul 07, 2008
amber f
Michelle~ I totally understand. I too am trying to cut back being on here so much. I have been following your blog though. Hope you don't mind. The new pics of Rory at the beach are so cute. It looks like it was a lot of fun. I will miss you on here and if you would ever like to chat you can always email me at Or if we would ever get together on in the chat room it would be nice to talk ~OT:) Take Care!
Jul 07, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Totally get it. It gets overwhelming and it is so easy to obsess. Glad to hear from you.
Jul 07, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
gotcha! good to hear from ya!
Jul 07, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
I am so glad you posted. I know how you need your time away. I just wanted to make sure you guys were ok. I need to check your blog to gt my updates now. Take care...just wanted to let you know I was thinkin about ya :)
Jul 08, 2008
Glad things are OK with you. Praying the feeding issues improve. Check in when you can. I too am trying to back away some. I am not going to get anything moved if I dont unpack what I have here. We have only until Aug 1 to be out so the rental company we hired can rent it out. Its getting kinda hard paying the bills there and here too.
Check with your
doctor first!