Posted By Posting
Jul 06, 2008
I took Bradden in yesterday for the fever. Again he has blisters on his tonsils. This is the second time in a month. If it happens again in the near future he is sending us to the ENT. Great another dr to deal with. Today is fever has dropped to 102-103. He said that it may take 4-5 days for the fever to break. I have to take Prestyn in Monday for his ear so he wants to check Bradden again then.

The babies are no better with their pneumonia. We are doing albuteral treatments every 3 hrs for the wheezing. Their appetite has been affected drastically. Again Mon if they aren't better then we will go to Rocephin shots for the pneumonia in both and Prestyn's ears also.

I looked at my pedi yesterday (we are on a first name basis. our children now have play dates) and told him I did love him but not that much to see him 4 out of 5 days this week and then again Mon. He laughed and told me he just wanted an excuse to make me come out towards his house so the kids could play since his girls never hushed about my kids. No honestly he will check all 3 of the babies and only bill for 1 which is totally fine with me.

I am going to crash now. It is again 3 am and I am just now getting finished. I may be missing for a little while. We are trying to finish packing and moving our things. I will try to get a minute every other day and just check on you and say hi. Hopefully I can report germ free next time. That would be so wonderful!!!

BTW Please Please continue to pray for Bradden. He is still eating very very little and drinking just enough to keep him dehydrated sometimes. He has lost another pound. He is now 18 lbs 3 oz and wearing a 3-6 mo shirt and 0-3 mo shorts b/c he is so tiny around the waist. Just remember him in your prayers. Carla

Jul 06, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
I am so sorry that things are not getting any better. I am glad you have a new ped that you get along with so well...that makes all the difference. I hope you can at least let us know how all the lo's are doing. Braddy's weight loss is such a scary thing...what did the ped say about it? I will keep them all in my prayers. Hope you can get some rest.
Jul 06, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh your poor boys! *hugs* to them i hope they get better soon!
Jul 06, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Wow! Girl, jmo, the dr sounds nice but with Bradden losing weight like that, the dr needs to do something and figure out why. What in the world?
Jul 07, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
I am with the pp. I know you like your doc, but something needs to be done if he is loosing that much weight that quickly. If it were me I would def be into another doc and not waiting for the ped to tell me to go!
Jul 07, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Sorry ya'll are having such a rough time. I hope you get something figures out soon and can pack some lbs back on little bradden.
Check with your
doctor first!