Posted By Posting
Jul 04, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Rough week :(
Mathias had a seizure this past Wednesday. :( He was in the pool for a swim lesson when it happened. Thank goodness his instructor was holding him b/c his body just went limp and he passed out. It lasted just a few seconds but it happened 2x in a row. He had blood work done at the ER and it came back normal. We are waiting for the results of the EEG done at the neurologists on Thursday. He's still a bit tired but otherwise back to his normal antics. He has been given the okay to resume his normal activities (riding lessons and swim lessons) but I am a bit anxious about that. Has anyone had any experience with seizures? I am afraid to let the little guy out of my sight. Libby
Jul 04, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
I'm so sorry to hear that. It must have been really scary. I don't have any inf t share but there are other mamas who have experience with this stuff.Cooper recently had a seizure and his mama may have some insight. As far as I know, it is unknown as to why he had one..Hugs out to yOu!
Jul 04, 2008
ceramom
Sarah
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
I am so sorry to hear this... Thinking of you. No advice because we've not dealt with this. Keep us update!
Jul 04, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
So sorry to hear this! It must have been terrifying and frustrating that they can't tell you why he had the seizure either!!! I don't have any advice, but I will be thinking of you!
Jul 04, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
sorry to hear that. why couldn't they give you the results right away? coy had one done last week and the neurologist read it on the spot...
Jul 05, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Oh no. I am so, so sorry. I cannot even think how scary that must be for you. I wish I could give you some advice, but I don't know very much about that. A lot of my family members used to seize when they had very, very high temperatures (those are hereditary), but this sound slike something very different. Please keep us posted. I am thinking of you and your little man.
Jul 05, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Everyone, thank you for your support. We had gotten so comfortable dealing with all of his stuff that this has thrown us for a loop. I thought he was back to his normal stuff but he is still really mellow. His coloring is also off - we might be taking another trip to the pedi on Monday. I wish I wasn't such a worry wart.:)
Check with your
doctor first!