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Jul 04, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy | Rough week :( Mathias had a seizure this past Wednesday. :( He was in the pool for a swim lesson when it happened. Thank goodness his instructor was holding him b/c his body just went limp and he passed out. It lasted just a few seconds but it happened 2x in a row. He had blood work done at the ER and it came back normal. We are waiting for the results of the EEG done at the neurologists on Thursday. He's still a bit tired but otherwise back to his normal antics. He has been given the okay to resume his normal activities (riding lessons and swim lessons) but I am a bit anxious about that. Has anyone had any experience with seizures? I am afraid to let the little guy out of my sight. Libby | Jul 04, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics. | I'm so sorry to hear that. It must have been really scary. I don't have any inf t share but there are other mamas who have experience with this stuff.Cooper recently had a seizure and his mama may have some insight. As far as I know, it is unknown as to why he had one..Hugs out to yOu! | Jul 04, 2008
ceramom
Sarah
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix. | I am so sorry to hear this... Thinking of you. No advice because we've not dealt with this. Keep us update! | Jul 04, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!  | So sorry to hear this! It must have been terrifying and frustrating that they can't tell you why he had the seizure either!!! I don't have any advice, but I will be thinking of you! | Jul 04, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.  | sorry to hear that. why couldn't they give you the results right away? coy had one done last week and the neurologist read it on the spot... | Jul 05, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :( | Oh no. I am so, so sorry. I cannot even think how scary that must be for you. I wish I could give you some advice, but I don't know very much about that. A lot of my family members used to seize when they had very, very high temperatures (those are hereditary), but this sound slike something very different. Please keep us posted. I am thinking of you and your little man. | Jul 05, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy | Everyone, thank you for your support. We had gotten so comfortable dealing with all of his stuff that this has thrown us for a loop. I thought he was back to his normal stuff but he is still really mellow. His coloring is also off - we might be taking another trip to the pedi on Monday. I wish I wasn't such a worry wart.:) |
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