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Jul 04, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
molson1525
have you flown yet? you are allowed to bring:

Medications, baby formula and food, breast milk, and juice in reasonable quantities exceeding three ounces and are not required to be in the zip-top bag. Declare these items for inspection at the checkpoint.http://www.tsa.gov/travelers/airtravel/children/index.shtm#4

basically, what you do is put all your liquids in one bag. for example, i traveled with a diaper bag and one of those shopping bags they sell everywhere (target/walmart). all my liquids (coy's meds, bottles filled with water, juice (adam & eve 4 ozers are great), my meds. diaper cream) were all in my diaper bag. The shopping bag had diapers, empty bottles, can of formula, change of clothes, etc. etc.). when you reach the security point declare to the security personnel that you have allowable exempt liquids in your bag available for inspection. if they tell you that they must "inspect" it now and want to or take it out please tell them you would like it done after the bag passes thru the magnatometer. you will not take everything out prior to screening and you do not have to-this will hold you and everyone up anyway. if they give you grief ask for a supervisor. you can also ask for a private screening if you want.

as far as water, i suggest putting water in baby bottles even if he is not drinking out of them.if you use dr. browns make sure you put that cap thing in there because mine leaked... you can fill up 2 8 ozers and they can't make you drink it nor remove it for inspection. that is the law.

carry this page with you http://www.tsa.gov/travelers/airtravel/children/index.shtm#4 and his medical notes just in case. remind them that you are informed of the law and are happy to comply with the law properly (that is they can inspect the stuff inside of your bag but you dont have to bring it out nor drink it etc. etc. ) i worked for DHS for 5 years and my dh still does... and they still tried to mess with me:) i just firmly and politely told them what i told you. good luck!
Jul 04, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Thanks I am flying on Tuesday. I have flown a bunch of times and it is the water they are the most annoyed with it seems. It just seems funny that I can have the same quantity of juice exempt but not water. I really didn't want to put the water in the sippy cups because I swear they always seem to leak but I will if I have to. I am hoping I get someone nice. It seems to be either they are so nice that pretty much you could walk through with a bomb and they wouldn't notice or they are complete aholes and feel the need to impress their power if you know what I mean. Thanks for the advice. I did print out the TSA sheet a while back and I carry it in my backpack when I fly and I always skip right to the supervisor when I encounter any issues. Thanks for thinking of us.
Jul 04, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
yeah, dont put it in sippy cause it will leak. carry it in bottles if you have to...just dont carry the water in those plastic bottles because they can (and will) take those away from you.
Jul 05, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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I figured I would post here since I didn't want to start another with your name but I was wondering how Aidan is doing. Is he still getting gas/bloat? Has it gotten better?
Jul 05, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Hey Sarah-Aidan is doing great. He really hasn't had any gas bloat or dumping since the first week. He is back to eating almost a competely normal diet although I think he has thrush right now which isn't helping the amount he wants to eat but he is eating all normal foods. It was definitely the right choice for us. He is so much happier and sleeping so much better and you can just tell he isn't in pain anymore for the first time in his life. I wish I had done it sooner. How is Quinn these days? Did your sister have her baby yet?
Jul 05, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
YAY YAY YAY for the mini update!!!!!!!!! Good news is always great to hear....:)~
Jul 06, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Hey molson, Quinn has been doing great these days. No problems to report. We have an appointment with the pulmonologist on the 14th. I plan on talking with him/her about her sleeping. It still concerns me. She is loving to eat, but of course, still having diarrhea diapers and such but I guess it's not a problem. She is getting big and is really tall (36 inches!) I'm so glad to hear that Aidan is doing great. I hope it continues that way and it is such good news to hear that the fundoplication is doing it's job!!! I noticed a difference pretty much immediately too. -Sarah
Check with your
doctor first!