Posted By Posting
Jul 03, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Hoping for a better night, when will the teething end!?!
Last night was awful; no that is an understatement. Cooper had an average day yesterday, didn't nap a whole lot, but close to normal. He always takes an early evening nap at around 5. Yesterday he was so tired and he fought and fought. I finally gave him some tylenol and he relaxed and fell asleep around 6ish. He woke about 7 and I nursed him and he went back to sleep, he was out. I laid him in our bed where we were resting and fixed supper and such. Well at 9 (his usual bed time) he was still sound asleep, so I figured he was just over tired and was out for the night. At about 10:30, he woke up and nursed and I got him ready for bed and put him in his bed. He slept there until 1:30, which is normal for him. When I got him to nurse, he was so restless, turning his head a wiggling all over the place. He finally slept again and after all it took to get him asleep, I left him on me. At 3ish, he woke agian and the battle began. By 5 I got up and walked around with him, tryed rocking, putting him in his crib w/ his moble and a slew of other things. Nothing would work. Finally at 6 he fell asleep. I prayed that he would sleep for 2 more hours. I finally fell back asleep and then he woke up again. This time he was ready to get up for the day. I looked at the clock, 6:30! Are you kidding me, only 30mins! Anyway, it was a crazy night and he was so cranky this morning. I am praying tonight is better. I don't know what his deal is. He is refluxing more for sure. I guess it is just the teeth. He went down well tonight. I better go get in bed before he wakes up to nurse. This is dh's last night shift, woohoo!!! I can't wait to get my help back.
Jul 04, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
I'm sorry you had such a bad night..Ughh, hopefully you are resting now. I have had a really crappy 24 hours so I am on your team! How is the elimination diet going? Could you have eaten something that is giving him trapped gas or do you definitely think its teething? I totally know how you are felling. It is crazy going to bed knowing that you will just wake up soon. I hope tonight is better. I'll wish you well as I nurse over and over again !
Jul 04, 2008
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
I am so sorry you had a bad night. Teething stinks! It seems to just be worse on our kiddos with reflux as they tend to reflux more with teething times. Sigh! Hugs to you today and I hope you get a little rest later on.
Jul 04, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Ugh. That sucks! I'm sorry. He might be fighting to drop his early evening nap. That is EXACTLY what Sebastian did at that age. I had to move his bedtime up to 6 pm. (still goes down at this time if he takes his afternoon nap early and is up before 2). I should warn you, though, that his wake-up time is probably going ot get progressively earlier. We went from 9, to 8, to 7....and now we FIGHT for 6 a.m. I've read that 6-7 wake-up time is pretty typical for most kids.
Jul 05, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
does sound like he's ready to drop that last nap. from then until 12 p.m. it is going to be a lot of adjustments to find the correct bed time for your little guy. for a long time we were on a 7 p bedtime w/ 6 am wake up. now, i'm shooting for keeping a 8 p bedtime with a 7 a wake up.. 6-7 am is normal @ that age. in fact, for a lot of kids bedtime does not dictate wake time. if you are lucky some kids will sleep 12 hours no matter when they go to sleep but others just cant...
Check with your
doctor first!