Posted By Posting
Jul 03, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Melissa - Sebastian's mom
How did Sebastian's scope go? I haven't been able to keep up with all of the posts - it's been a medical mess around here. Did I miss your post? Libby
Jul 04, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hey! How did everything go for you guys? Sebastian did OK. His tests were runnnig four hours late, so that REALLY sucked. By the time we got home, he hadn't eaten for 23.5 hours. Watching him go under was horrible - he thrashed around, screamed...his eyes rolled back in his head. I nearly lost it. When he woke up, he was hysterical, so they gave him some narcotic. I was NOT happy...because as soon as he saw me, he was Ok and then fell asleep in my arms. Our GI is on vacation all week, so no results for us until next week. Thanks for checking up on us!!
Jul 04, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Oh no! I am so sorry that it went so rough. Poor guy. I hope he is back to his normal self. Was the doc at least able to give a report on the visuals? I hate waiting for lab results - it just puts my nerves on edge. We aren't scheduled to go in until 7/16 so we still have a few weeks.
Jul 04, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I hope the resluts came back fast. I have NEVER been allowed into the OR to see Jedd go under. Our hospital won't allow it. I think I may be grateful for that though.
Check with your
doctor first!