Posted By Posting
Jul 03, 2008
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Aidan's Post-Op Appointment
Well we drove 7 hours in the car yesterday(3 and a half each way) for a 5 minute appt for him to remove some stitches and say he could eat anything he wanted now. I was a little annoyed with him because with every question I asked he just said that's not from the surgery ask the ped. I mean he did still go to medical school so I am sure he could still answer the questions but I understand I guess. He was running like an hour behind and was really trying to get out of there. So we are supposed to go back in 3 months for a recheck but unless we are having some issues I am not going back for another 5 minute appt for him to say everything is great. I just wanted to say Thank you to whoever recommended BJ's Pizza and Diddi Reeses by UCLA. We have been there twice now while inpatient and went again yesterday. Man that is some good pizza and cookies. That was the best part of our day yesterday.
Jul 03, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I'm so glad that he's recovering. What a frustrating day you had though - ugh. Glad you liked Didi Reese (can you believe how cheap those cookies are?) - there's also a very good Chinese/Thai place next door that I try to visit when I'm in the area. Hope Aiden continues to recover - keep us posted :-)
Jul 03, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
How frustrating. At least you don't have to go back at least for a while. Glad everything is going good!
Jul 03, 2008
amber f
That is quite the drive for 5 min. And I'm sure they charged you for the standard amt of time. I would be a little frustrated too. And if you are following up with your ped I wouldn't go back either unless there is a problem. But at least you got to have awesome pizza and cookies!!!
Jul 03, 2008
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Donnessa-I thought it was you that recommended those places but I can't remember anything anymore. Seriously those cookies are so good and so cheap. I couldn't believe how cheap they are. My husband had that Thai place while we were inpatient one night. He said it was good too. Thanks again.
Jul 03, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
SOOO glad to hear that he is doing well. I pray it continues. That is such wonderful news. I don' tthink I woudl drive that far either for an appt. again. I woudl jsut deal with someone in town....LOL Why is that Dr. think they can do that!!!!! It infuritaes me to no end.
Jul 03, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Sorry that you doc let you down. Docs seems to be quite good at that. Pizza and cookies sound delicious. I wish Baltimore wasn't SO far from UCLA....
Jul 03, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Glad to hear he's doing well. I know what you mean about the rushed visits. We drive 6hr (3 each way) to the pulmo and they always say he's looking good, see you in a month! At least this time we get to wait 3 months. Such great news. I hope you won't be needing to go back any time soon!
Jul 05, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
I'm so happy that he is doing well. What a waste to drive all that way for such a short least you had some good pizza :)
Check with your
doctor first!