Posted By Posting
Jul 02, 2008
Chalk up pneumonia as a culprit to flare ups.....
That's right... After doing so well for 6 mths with no medications the babies journey now includes Zantac. They started running a fever last Thursday. They weren't improving just getting worse so yesterday (Monday) I took them in.

Prestyn's ear is still infected. It has been infected now for 13 days. He was first put on Amoxicillin then Augmentin when it wasn't getting better. Along with the ear infection now he also has pneumonia. The doctor put him on Zithromax and Albuteral syrup. Luckily I don't have to do the Neb treatments but the Albuteral is what causes their reflux to flare up. After the first dose here they both started vomiting up acid. He put them on the Zantac yesterday evening and it seems to help some. If not drastically improved by tomorrow he is going with Prilosec.

Avary has an eye infection and pneumonia. He is a lot worse than Prestyn. It has affected his eating, sleeping, everything. He is a sick little baby. He is wheezing constantly and theows up every bottle. He is on the verge of dehydration so I have started pedilyte. I have to do a follow up tomorrow for them. He is on the same medicine as Prestyn. I will keep you updated. Oh how I pray the medicine issue and the flare up is only related to the sickness like we think and not long term..... The road that these babies on here have to travel!!!!!!

Jul 02, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Well, I'm sure you're not totally surprised by this. I hope it's not long-term, but I wouldn't bank on it. Hope they feel better.
Jul 02, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Oh no! I am so so sorry! Neb treatments aren't fun but they might be easier on the reflux than oral albuterol. I hope they are 100% soon.
Jul 02, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
I am so sorry to hear this. I hope you can control this so they can remain at home...please let us know!!!
Jul 02, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
UUGGGHHHH. I am SO sorry. I hope everyone gets healthy ASAP. I feel for you and the little ones. It seems so unfair.
Jul 03, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
UGH! Poor sweeties. I sure hope that the teen years go easier than this. Keeping you guys in our prayers.
Jul 03, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Goodness, I am so sorry. I can't imagine how awful that must be for them. We have never had luck w/ zantac, so don't get discouraged if it doesn't work. I got really frustrated with the whole med situation, but we eventually figured out what works best.
Check with your
doctor first!