Posted By Posting
Jun 28, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Quinn Update (from Jessica)
I posted this under Jen's thread but thought I woudl copy and paste it here so that others will see it.

I talked to her today on the phone. They were admitted and even though Quinn is still acitng "normal" she was dehydrated. They put in an IV for fluids and are running her G tube at about 20cc's an hour.

That's NO where near enough calories for total nutrition since they have put Quinn NPO (nothing by mouth). They are looking to switch formulas to Neocate plus one and see if that helps any.

They are also considering a GJ tube to see if they can give Quinn's gut a TOTAL rest. That should help it to heal better since they have found blood in her G tube residuals.

She also had blood drawn and run for testing. It can back with some stuff going on, like a virus somewhere. That's also how they knew she was dehydrated.

Keep praying ladies. They are really looking to have a "team meeting" so that ALL the dr. can look at Quinn together and see if collectively they can figure out why she gets cronically dehydrated and why she has all these other issues.

On a GREAT note, Quinn did wonderful last night, no destas at all...which you know always happens when Quinn is in paitent and on a pulse ox.....LOL
Jun 28, 2008
jmom
Josh 12 yrs colic as a baby
Jenna 6 yrs dream baby
Jessica (6/11/07) Silent reflux dx at 3 weeks
Went off meds successfully at 3 mos
Went back on Prevacid 8 mg TID 1/3/08
I'm very happy to hear that the doctors are getting together for a pow wow. I think that's going to be key in Quinn's complicated issues. Cristy
Jun 28, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I pray they send Sarah home with some info and not just with questions. Hopefully the docs will get together!
Jun 28, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
I think all her doctor's in one room would really be a great thing! I hope that they can finally get to the bottom of everything Quinn's got going on! Thanks for relaying the update Jessica!
Jun 28, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
thanks for the update. i sure hope the doctors can figure it out together!
Jun 28, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
Thanks for the update. It is so scary not knowing what is wrong with your child. It brings tears to my eyes. I am really feeling for Sarah and I hope that she gets some rest during all of this. I cannot believe all that they have been through.I hope that the doctors coming together will answer some questions. I am thinking about them tonight and sending my love.
Jun 29, 2008
satey
Jakie and Sammy's Mommy. They were 32 week preemies- both with lots of issues. Jake has a TE Fistula and EA. Sam has a unilateral cleft lip and palate and a hypospadias. They have both had too many corrective surgeries than I'd like to mention. They are such brave little men!
I am also glad to hear of the upcoming pow-wow. That should help figuring out whats going on. They've got my prayers!!
Jun 29, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Thanks for the update. I pray that the doctors will be able to finally get to the bottom of this - it has to be SOMETHING.
Check with your
doctor first!