Posted By Posting
Jun 28, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Anything new on Quinn?
Just wondering. We are praying for them. Maybe this can turn out to be good if they find out what her problem is... then maybe she will be on the road to being healthy for good. Poor Quinn. :( ((HUGS)) to Quinn and Sarah.
Jun 28, 2008
bigdaddy
Liz, mom to Donnie 12/2005
Surgery for Pyloric Stenosis at 5 weeks old
GERD since 4 weeks old
Colic until 13 weeks old
Delayed Gastric Emptying
MSPI
Surgery for Tubes and Adenoidectomy at 14 months old
Anemic since 9 month check
Febrile Seizures
Speech Therapy
MEDS: Zyrtec, Nasonex, Xopenex,
Vitamins with iron, and back on Prevacid as of 12/2008
I am thinking and praying for her. -Liz
Jun 28, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I talked to her today on the phone. They were admitted and even though Quinn is still acitng "normal" she was dehydrated. They put in an IV for fluids and are running her G tube at about 20cc's an hour.

That's NO where near enough calories for total nutrition since they have put Quinn NPO (nothing by mouth). They are looking to switch formulas to Neocate plus one and see if that helps any.

They are also considering a GJ tube to see if they can give Quinn's gut a TOTAL rest. That should help it to heal better since they have found blood in her G tube residuals.

She also had blood drawn and run for testing. It can back with some stuff going on, like a virus somewhere. That's also how they knew she was dehydrated.

Keep praying ladies. They are really looking to have a "team meeting" so that ALL the dr. can look at Quinn together and see if collectively they can figure out why she gets cronically dehydrated and why she has all these other issues.

On a GREAT note, Quinn did wonderful last night, no destas at all...which you know always happens when Quinn is in paitent and on a pulse ox.....LOL

Check with your
doctor first!