Posted By Posting
Jun 27, 2008
satey
Jakie and Sammy's Mommy. They were 32 week preemies- both with lots of issues. Jake has a TE Fistula and EA. Sam has a unilateral cleft lip and palate and a hypospadias. They have both had too many corrective surgeries than I'd like to mention. They are such brave little men!
TE fistula and Esophageal atresia anyone?
Anyone out there with a child born with a TE fistula and Esophageal atresia? My son was born 08/07 at 3lbs 11oz (32 week preemie twin) with this and had it repaired at 2 days after birth. Subsequently, he has had countless EGD's to dilate his esophagus where a stricture had formed. He has been on Regalan and Zantac since then to control his GERD. His esophagus works normally up to the point of the repair. The only thing that helps him to swallow and keep his food down from the point of the repair-- is gravity. Thankfully, he has not needed any EGD's since 12/07. I was looking for others out there who have a similar issue. Its always nice to have a friend who knows what its like.
Jun 27, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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So sorry. I do not know of anyone on here who has had children with this, but I do know of someone from my blog site. Here is a link! Let me know if it doesn't work for you http://shareyourstory.org/webx/.ef52482/ -Sarah
Jun 27, 2008
satey
Jakie and Sammy's Mommy. They were 32 week preemies- both with lots of issues. Jake has a TE Fistula and EA. Sam has a unilateral cleft lip and palate and a hypospadias. They have both had too many corrective surgeries than I'd like to mention. They are such brave little men!
Thanks for the link. Kind of you to look her up for me.
May 11, 2009
mom2wesley
Wesley was born with esophageal atresia (no esophagus). His colon was used to create an esophagus in April 2009, so now we're dealing with the reflux.
My son was born with esophageal atresia, but no TE fistula. Wesley just had his repaired at two years old. Prior to that, he had a spit fistula (so everything that went in his mouth and down his throat came out his neck) and a g-tube for feedings. We are just now beginning to deal with the reflux, but I can tell that battle is going to be difficult. I know you posted a long time ago, but I just wanted to say that yes, I understand what you are going through!!
Check with your
doctor first!