Posted By Posting
Jun 26, 2008
gianna
Gianna
Mom of Xavier, 8.5 months
Reflux diagnosed at 3 months
Updat e- finalyl went to a GI doc
I am a recent addition to the boards, I have a 9 mo old son with reflux. We finally went to a GI, we were seeing an ENT for other reasons who had prescribed him Prevacid. We are on 15 mg 2x per day, which is a lot, but it was wearing off at night and he was having breathing issues/chocking at night. So he was still having some of these issues so the ENT sent us to a GI. We finally went, after the 1.5 month wait and the guy was so arrogant, I am so disappointed. He didn't even take a history. He asked about current symptoms and that was it. He spent 10 minutes wth me, didn't even acknowledge my son's existance utnil he listened to his chest at the end and then spit out a diagnosis of milk intolerance and he put him on neocate. I am confused though and I don't think I agree with the diagnosis and neither does my pediatrician. He said it was milk intolerance because he regurgitates, coughs cronically, is on lactosefree formula so he wrote down "gassy" and is constipated. However, he has only been constipated for about 3 months, since he started solid foods, he is on lactosefree becasue he was colicky and gassy when he was 2-3 months old and not since then, and I never tried to switch back becasue I was sticking with what worked and he eats yogurt and milk products all the time and it doesn't make his symptoms worse. He didn't even ask me if he eats milk products adn what happens if he does. So I don't see how it can be milk intolerance?? So he said to be on the neocate for 1 week and he will be better and if not, to call and come back for tests. I went to the GI because the ENT and I were worried that there could still be acid coming up on him since he still has symptoms. The GI said he is too young to have any problems even if the acid is cmming up and there probably is some amount coming up, but if he scoped him he wouldn't see anything because he is too young and he never sees anything on a scope of babies that age. That is contrary to what I've read, and I thought the whole danger of not treating reflux was the problems the acid causes even within a year, but I don't know. I am just mad and disappointed. My pediatrician said to do what he said for a week since it is only a week and then to call her and we will go from there. I'm just mad, he was such a jerk and I am mad at myself because I didn't even think to say that he hasn't been constipated for that long, but it all happened so fast. My ped said it is his responsibility to ask those questions and he shoudl have taken a better history. My son has been on Nutramigen in the past and it didn't work. I told him that he had been on that formula, but he didn't even ask how it worked - he just said good, that now my insurance co will pay for the neocate. This guy is obviously in the prediatric business for the money - because he clearly does not like children!! My son screamed when he examined him and he didn't even talk to him or anything. Ugh!!! Teh ENT is the one who referred me, but there is only 1 other ped GI in the area. Any one here with milk intolerance experience - does it sound like it fits? How long on the neocate utnil I should see improvement? He said 1 week, my ped thoguth it was 2-3, but I was wondering if I should start seeing improvement even before a week.
Jun 26, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I totally agree with you...the guy sounds like a jerk! I would give the other GI a chance. Maybe he's better, he'd almost have to be better, right?

It's hard to say if it's a milk intolerance but if he has yogurt and milk based stuff, it may not be. My opinion is to see the other GI and get some real advice and hopefully he'll take his time with you. Don't beat yourself up! It is his responsibility to go over everything with you! You could make a list and go see the other doc. Then with a list of things to remember, maybe it'll be easier to remember even if he is pushing you out the door. I remember someone saying that they stood between the doc and the door with their list in hand, lol.

Jun 26, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Nothing quite like a doc telling you that you're nuts when all you want is to help your kid. I don't know if it's a true milk intolerance, but if your little one is constipated, the Neocate can exacerbate that, so watch for it. About 2 weeks or so should tell you if the Neocate is helping, though some see relief within a few days.

I'd say get the ENT to refer you to the other pediatric GE. A doc not taking a history is just asking for a malpractice suit.

I totally concur with maggiemom for writing a list of questions and maybe write your own version of his history to take with you. The moms here are fantastic, so any questions, ask them here - you'll get a lot of great answers!

Jun 26, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
well, milk intolerance presents in different ways for different kids. my LO can't tolerate milk based formula nor any milk products.. severe vomiting, diarrhea, paleness, lethargy.

what are your sons symptoms aside from the breathing/choking issues at night? does he arch? refuse to eat? comfort feed? cry a lot? have eczema? breathing problems during the day?
Jun 26, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Sorry your GI sounds like a quack. Maybe he never sees anything on scopes in children less then a year because he never does them. My child was scoped at 10 weeks and 8 months and on both scopes he had severe esophagus damage and ulcers so it is definitely possible to see damage in a child under a year. I would say a second opinion is in order. A chronic cough can be a sign of intolerance and if your son goes back and forth from solid poop to diarrhea it can be a sign of constipation. I highly doubt the Neocate will make a difference if you have already tried Nutramigen but it can't hurt to try it for a week. Don't give up if he still has symptoms after this and the changes don't help. Keep searching for answers even if that means finding a new doctor. Some doctors are worth their weight in gold and others are not.
Jun 27, 2008
gianna
Gianna
Mom of Xavier, 8.5 months
Reflux diagnosed at 3 months
Thank you for the responses. I appreciate it. I am going to make another appointment, it is just frustrating becasue it takes so long to get in! We waited so long adn I was so excited for answers. The 7 days is up on Tuesday so then I call my pediatrician and we talk about next steps. I have seen no difference so far with the neocate. I will keep you all posted and thank you again!
Jun 27, 2008
gianna
Gianna
Mom of Xavier, 8.5 months
Reflux diagnosed at 3 months
I realized I never answered mom2coy's question - his symptoms right now are just regurgitationa dn coughing. His relflux seems to cycle better and worse every couple of months. He is in a better phase right now, altho0ugh he was bad when I made the appointment. So that is also why I quesiton teh milk thing - when it was worse, he was not eating any milk products. I only recently introduced them and his reflux is better not worse. Mt ped said we can try to take him off the second dose of the Prevacid after teh week is up and we treid the GI's advice...I hope we can be down to 1 dose!!
Check with your
doctor first!