Posted By Posting
Mar 13, 2008
duskee4573
Eosiniphilic Esophagitis
After battling with reflux as a newborn, now we are starting all over. My almost 7 year old was just at the Mayo Clinic for almost 7 weeks. It is a long long story and he has a lot of stuff wrong, but one of the things we never expected to hear was that his resolved reflux was never really resolved and he has severe damage to his esophagus and Eosiniphilic Esophagitis. He has now finished his swallowed steroid regimen (8 weeks) and his difficultly swallowing symptoms came back full force. He is choking on little tiny pills, (Zantac), and he choked on melted cheese a couple of days ago. Since the Zantac is not working like it should our next step will probably be Protonix. We have an appointment in Abilene on April 7th and will take his Mayo records with us. They recommend that if the swallowed steroids don't resolve the issues that he get another scope and 20 biopsies. (He's already had 8). Does anyone else have EE? And was it related to allergies? My son does not have ANY allergies that an Immunologist, or the Mayo Clinic could find. The only things listed in his medical records as allergies are Reglan, Prevacid, Versed, and he cannot take Prilosec due to the fact that his reflux gets a thousand times worse. Monica C.
Mar 14, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Monica- I know there are parents whose kids have had EE but they mainly use the "General beginner and infant forums". you may want to repost to them.

I think EE is most commonly caused by acid reflux but that the type of white cells that accumulate there seem to be the same type present in allergies (???). I believe there are also other causes like viruses etc... Here is a good link to an article...

http://www.medicinenet.com/eosinophilic_esophagitis/article.htm

HTH!

~Jen
Aug 04, 2008
lilysmom55
Hi Monica, My name is Amy and I have a similar story to yours. I am new to this site so forgive me if I make mistakes! My 8 year old was diagnosed this past winter with EE and no allergies were found. He is doing a lot better on prevacid which gives me hope that maybe it is just reflux related (although the kid never complained about his stomach until a year ago). We need to do another biopsy to see if the numbers have come down, but I have been putting it off. I would love to know what kind of probiotics you give him and how often and how often you give him the enzymes. I have found it is hard to get good info on EE other than the basic stuff - do you have a favorite website? My daughter was just diagnosed with a hiatal hernia and acid reflux. She also has cyclic vomiting syndrome and one of her drs said to put her on fish oil to help soothe the esophagus and it is a good anti inflammatory. I started to give it to my son after he was diagnosed and he said it makes him feel better. I would love to get both kids off prevacid and go for a more natural approach. It scares me to have them on it long term since we don't know the long term effects. Thanks, Amy
Aug 05, 2008
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds
EE
My 2 year old son has been diagnosed with EE as well as other things. His EE developed even after being on elemental formula since he was 6 weeks old. He only tests positive to being allergic to milk, although I am having more extensive allergy testing done. My son has had severe choking and food impactions to the point of not breathing and turning blue.. He has EE in addition to a separate diagnosis of severe GERD. In some instances, EE cannot be related to food allergy.It can be very tricky to figure out, as in our case. I hate to be bleak, but I have not seen any improvement yet, although my son is not allowed to eat orally because of aspiration now, so it is hard to say if the choking is any better. He is on swallowed steroids that will not be discontinued. A lot of times, when the meds are stoppped, the EE symptoms come back. Hugs!!!
Check with your
doctor first!