Posted By Posting
Mar 07, 2008
Lost my 33 yr old most physical fit husband 1 year ago, I miss him and his help! Feels so shitty and unfair. My baby getting better is the only thing that would bring my sanity back.
19 Month old Silent Refluxer.. took him off meds no difference?!
So I have taken my silent refluxer off his prevacid and haven't noticed any changes. (over a month now). so he is no longer on anything. I am concerned and fed up with my Dr and need to find new one which takes up so much time as well. So I go back to Dr and discuss history on what we've tired and go from there..again. He doesn't think he's a refluxer, I don't think he's familiar with silent refluxers?! I am just tired of being tired. Ok so he only sleeps when he is upright all his life, rarely burps/farts..but is starting to actually push his little farts out now.. which I think is huge! He has wet burps. Fusses after feeding / drinking. Wants to have more booby to fix his uncomfort.. which probably i know makes it worse. I give him some maylox for his discomfort which helps him for sure, but again my anal dr won't give him anything for his discomfort.. because it only works for 30 mins he says. Going for allergy tests next. Any other silent refluxers want to share want has helped them? Anyone suggest good GI in Vancouver? Thanks, Melody
Mar 07, 2008
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Melody, try posting this in the "general beginner and infant" forum. It gets much more traffic.
Mar 11, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Hey Melody, I'm not sure if you posted in the other forum. But I remember you posting your story a little while ago. I'm so sorry that your son is not getting any relief! I would surely search the internet for a better GI doctor. I don't live in the Vancouver area so I couldn't recommend anybody to you, but I would surely try to find another doctor to treat your son adequately. If he doesn't feel it is reflux, then perhaps he should try and find out what it is... I'm so sorry. I hope that you are doing ok. -Sarah
Mar 12, 2008
Hey Melody. My daughter was a silent refluxer also. For her to spit up/throw up is a huge deal. For what it's worth, 18 months was the hardest age for reflux for us. Is your son teething? Teething made Annie's reflux so much worse. We actually tried to wean Annie off her meds at this age and had to go back to due to her bad flareups during teething. Also, with the reflux and teething combined, it made her more prone to ear infections. Have his ears been checked recently? By this age, Annie was on her 2nd set of tubes because of the continual build up of fluid of her ears - all caused by reflux issues. I hope you can find another doctor that can help. Wet burps, wet hiccups, audiable refluxing, and bad sleep patterns were all signs of a bad reflux flareup for us. In order to make her more comfortable, we went back on meds, elevated the head of her bed, gave her smaller more frequent meals. We also discovered that the timing of her meds made a huge difference too. We split her dose with 1/2 in the am and 1/2 in the pm. We started adding Zantac along with her Nexium in the pm too. 5 years ago, doctors thought a single morning dose was good enough. But, they've found out that babies/kids metabolize the meds much quicker and aren't in their systems as long as they thought. Patti
Check with your
doctor first!