Posted By Posting
Jan 23, 2007
nettie
Medicine dance
My daughter is almost 3. She has had reflux since the second she was born. She started on zantac at a couple weeks old and graduated to prevacid and reglan. Reglan made her cry even more. She was never happy her first year, but grew well and hit all her milestones. My biggest concern now is she is on all kind of medicine 2 doses of 15mg prevacid, 2 doses of pepcid, 2 doses of erythromycin and now 2 doses of Bethanechol. It does help, but it is not a complete solution. She still sleeps poorly (although the best it's ever been) and she can't run without refluxing. I want the magic answer that fixes it all. I know she is much better off then so many kids, but I don't want to have to settle her down in gymnastics or tell her she can't have more water. I find it hard to answer her questions when she asks why she has to take medicine. We try not to talk about her refluxing or make a big deal out of the throwing up, both of us go out of our way to prevent it, but how do I educate her and answer her questions without leading her into say things like her stomach hurts?? This fall was really hard on her, she had a horrible cold. She threw up for 2 month straight. Since then when she goes to sleep she associates it with throwing up. We are trying to bribe her back into sleeping without us holding her hand. I keep reminding myself that this won't last forever. It's just like the colic she had, she will sleep some day. I found this site in the fall when things were almost at their worst and I am grateful this site exists. Just knowing someone else is out there dealing with these issues makes me feel less alone and hopeful.
Feb 12, 2007
3girls
lise
medicine dance
We have had a similar range of medication and varying results. we have 3 girls with reflux, the oldest has resolved, she is 7 years. the 2 year old and 4 year old are still suffering. The 4 year old has the most severe symptoms and is difficult to manage. She also has bowel dysfunction and needs medicationfor this as well. Recently we had a gastric emptying study and added Motilium to the mix of medication which has had great results. Our daughter 4 years is now showing some interest in food for the first time. Getting her to eat is no longer such a battle, and she even asks for food at times. It is so hard when they cant keep anything down, but I hope it will get easier. I am concerned as she will start shcool soon and I am not sure how this will go?
Feb 15, 2007
ssh
My daughter is 2 years old and is on 20 mg of prevacid, but nothing else. I can understand your concern about all the different meds she is on. I can't imagine how hard it is on her to not be able to run, etc without refluxing. I do remember my daughter doing this occasionally but not all the time... so sad. I don't have any advice, but I assume you're seeing a specialist? Have they been able to determine what's causing it? Is there anything they can do? I don't know how I could handle the stress of having my baby throw up for 2 months... you must have been at your wits end as well as totally stressed from watching your daughter go through this.
Feb 21, 2007
nettie
Update
Thank you for the support. She is actually doing much better after adding the Bethanechol and isn't having as many episodes while running and playing. We also did the gastric emptying and she is delay 2-3 times (I am not sure where that is on the good – bad scale). (They don’t know why.) We also had a ph probe test done and an endoscope done, which gave us the best picture of how much GERD she has. The average was 1 reflux every 3 minutes. We were very surprised it was so high (to us anyways). It’s the numbers and black and white facts, that make someone who doesn’t live with a child with GERD, be more understanding I am also very worried about school, she will start preschool in the fall and I want her to be confident and not have this be a source of embarrassment for her. I hope that she out grows it, it's good to know some have outgrown it. We have been seeing a pediatric GI doctor at our local children's hospital since she was 1. After she turned 2 we decided to look beyond or local hospital, since we were concerned with her level of care. The DR didn't seem to have time to worry about my daughter or remember her and the nurses took 2 days - 1 week to call back. We finally decided on a DR at CHOP (children's hospital in Phili), it took us 6 months to get an appointment. It was worth every minute and all 6 hours of drive time crying. The DR and nurses there care about her as individual and are willing to work with us in a timely and considerate manner. The DR there gave us hope and made us feel good about our continued fight to make her more comfortable. The previous DR (including one pediatrician) kept on suggesting it was a behavioral issue more then a pain one, even at 2 weeks old. I am feeling more confident that she will learn to self sooth and she is already doing a better job of putting herself to sleep. It is still a struggle, but she can cry some and I do see the light.
Oct 10, 2007
wheezey2
7 year old with reflux
What is Bethanecol? My daughter was diagnosed at 4 months and was on Zantac and Reglan until 1 year and did okay when off meds. This summer she caught Whooping cough and her reflux was aggrevated. She vomited for 1 month straight especially at night. We started her on Prevacid 30 mg once a day with improvement, but she gets worse with exercise. She vomits when she is playing soccer. I feel so bad for her. I need help! She is not allergic to anything. Reflux was confirmed with a scope at the ENT office. Next step is to a GI specialist.
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