Posted By Posting
Jan 19, 2007
Amalia 11/1/06, Silent reflux- Weaned off prevacid in the summer- back on again 15mg. Back on lactaid. Atalia- 6/17/08 DX with GERD and colic at 9 days of age. Appears to have mild MSPI. Upper GI. On Prevacid 22.5mg. Successful transition to whole milk! Eats everything!
Pic. Amalia and Atalia having fun at home.
Signs and symptoms of MSPI?
My baby (11 wks) no longer has trouble feeding (gagging and choking so much she could not do the bottle or breast), has never had vomiting, or stools with blood/mucus. She is on Prilosec 10mg. The biggest issue right now is the sleep routine as already mentioned in my other posting (wakes up 45 minutes-1 hr after feedings and before she can be put to sleep due to reflux). She definetely has a soy intolerance- when we tried that formula, the reflux was horrible and she would cry all day. Now, she does not cry because of it, it just wakes her up, becomes unconfortable and you can hear the hoarseness/congestion, wheezing, coughing and at times hiccups. She is currently on lactose free formula (regular formula with lactose gave her lots of gas). Considering her symptoms are milder now, could she still have a milk intolerance or is this only present with more serious symptoms? The biggest challenge right now is the sleeping during the day- I do not know if I should try switching formulas again. BY the way, her formula is thickened with 1.5 tsp oatmeal (Beech Nut) per ounce. Thank you so much!
Jan 20, 2007
Beth (mom of Oscar)
my son is 9 wks old & we have been struggling w/ the sleeping issues also. it appeared that everytime he got to sleep he would wake himself up 5 min later w/ some symptom of reflux. i found that his sleep has gotten a little better now that his medicine is working (15 mg prevacid). he still struggles & has to fall asleep in our arms. we are just now trying to transfer him back to his crib as he slept in his car seat for several weeks to be more upright after feedings. i know its frustrating but i think at this point we have to do whatever works for our kids & helps them get the most sleep. good luck!glad to hear switching to the beech nut brand helped!!!!
Jan 21, 2007
Signs of MSPI
Our daughter had stomach pains... she'd lift her legs to her stomach and would scream. She would wake constantly throughout the night because of the pain and nothing seemed to help. She also had traces of blood in her stool, which was tested by our Pedi. Once we put her on Nutramigen she was completely different.... still gassy, but it didn't hurt her like it did on the regula Enfamil. Good luck!
Jan 21, 2007
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Here is some info I found for you on MSPI....Milk and/or soy protein intolerance (MSPI) describes a reaction to the PROTEINS (not lactose sugar) in milk and soy which damage the inside lining of the intestinal tract. The cause of this problem is not fully understood. Your child may be born with this intolerance or may aquire it later. It is also not the same thing as lactose intolerance in adults which is simply the inability to digest milk sugar (lactose) due to an enzyme deficiency. Babies with MSPI may also have a secondary intolerance to milk sugar as a result of intestinal damage already present. This intolerance to milk and soy PROTEIN is inhibited by a change in the cells or the gastrointestinal tract. Your child will probably outgrow this problem by late infancy or during the second year of life. MSPI is diagnosed by a detailed history. Your child will be exhibiting one or more of the following symptoms: bloody stools, diarrhea with water loss, constipation, irritability (putting it mildly), weight loss or failure to gain, vomiting, appearing to be hungry all the time or refusal to eat at all. The doctor will question you as to the types of formula, if any, your infant has been on and how they reacted to each one. A description of the child's bowel movements is necessary. The doctor may elect to do an endoscopic examination. During this procedure, the doctor uses a lighted instrument to look into the small bowel and/or rectum. Damage (called colitis) is present if the lining is red, inflamed, or bleeding. Inflammatory changes may be noted on tissue samples obtained during this test. Less invasive testing can be done by obtaining a stool sample card to check for blood. It is the combination of the colitis with some of the symptoms listed previously which confirm the diagnosis of MSPI. The treatment for MSPI is the removal of the offending milk and soy proteins when diagnosed. When diagnosed, most infants need to be on a strict milk and soy free diet until they are 9 to 24 months old. The best treatment is for mother to breastfeed and eliminate the proteins from her diet. Formulas which contain predigested proteins, such as Nutramigen, Alimentum, Pregestimil, Neocate. Abby has MSPI but never had any blood/mucus in her stools. I think she has a more milder MSPI. She did horrible on milk or soy based formulas. She did better on Nutramigen but still was fussy when she ate. So her GI suggested that we try Neocate. We did and she is 100% better! But she also has been on 7.5mg 2x's per day of Prevacid. (1) First is the Prilosec that you give her compounded? You have to be very careful giving compouned medicine. For it to bed effective it needs to be made with 16.8% sodium bicarbonate and has a shelf life of about 2wks. It also can not be made with a flavoring which can make it unstable. (2)Second, how often are you giving the Prilosec? We noticed a huge improvement when we give Abby the Prevacid twice per day b/c babies metabolize the meds faster then adults so they need it more often. (3)You might also want to make an appt with a GI who has much for experience in treating reflux and MSPI if you already aren't seeing one. (4)You could also check with her dr to see if you can increase her dose to see if this helps her symptoms. Abby's GI told us not to add any rice or oatmeal to her bottles at that age b/c their systems are still mature this can irritate them more. (5)Have you tried not adding the oatmeal to see how she does? Then of course you can try a hypoallergenic formula like Nutramigen or Alimentum. This might help and be all she needs. I would probably try this if you have tried all the above things and their isn't a change. She def can have MSPI and just have the symptoms that you mention. So babies do have more severe symptoms and it is easier to notice. It is really trial and error untill you find the right combo of formula and meds. Here is the link where I found the info. There are other moms with babies that have MSPI on the forum that also might have more info for you. Good Luck! Andrea
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