Posted By Posting
Dec 02, 2006
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Failure to Thrive
I was just notified by Quinn's OT that her doctor had diagnosed her as "failure to thrive". I sort of knew this was bound to happen since she cannot gain weight even on an added calorie diet, but I'm not taking the news very well. Now they are talking about possibly inserting a g-tube to help her with weight gain. And her poop is gray... what does gray poop mean??? The doctor said it may indicate a liver problem. Any body else have any ideas? Quinn goes to her new OT on Monday. Has any body else's baby been diagnosed with "failure to thrive". How did you take the news? What did they do to help gain weight? Oh... I think I should add that Quinn is 10 1/2 months old. -Sarah
Dec 31, 2006
flicksmum
Mum of felicity, 2 years old now. diagnosed "failure to thrive", GERD.
Has had NG tube and now Fundo and Peg.
failure to thrive
Hi Sarah, nice to hear someone else was shocked at the words "failure to thrive". I heard it at 12 weeks old. I thought I was the worst mother in the world, what did I do? It's not us, doctors just like to give different stages a name. Flicky has GERD and last year (05) had a fundo and peg (g-tube). Yes we had our ups and downs for a few months but the peg is sooo good. She used to have 200ml/day drinking, now she has 800ml on the kangaroo pump overnight. Was adding polyjoule but now on neocate advance. She doesn't put on huge amounts of weight, but she's not looseing it and thats the main thing. Not sure on the poo statess but have you had her iron levels checked? If it's low, that doesn't help the weight gain. Good luck and keep me posted... Annie
Jan 29, 2007
momof4girlz
Mom of 4 girls-
Marilyn 9, Katie ( former GER baby ) 7, Hannah 3, Maggie 8 months -VACTERL baby- hemiverterbra, low imperforate anus , atrial septal defect, GER, grade 2/3 kindey reflux on left side , right kidney smaller then the other with 20% function and left 80% function , possible ectopic ureter, missing right thumb , radial hypoplasia , high arched palate and a beautiful smile and personality
Yes my daughter was also diagnosed with failure to thrive. She was 4 months old and weighed in at 10lbs 12 oz and she had weighed that much since she was 2 months old. But the failure to thrive wasn't from her GERD but from renal issues . That is another thing , things that can cause failure to thrive : heart problems, GI problems and renal probelms. Have this all checked out as well to rule everything else out . If you already have then your on the right track. How did I feel about that diagnosis ? Like the worst mommy in the world because every associates failure to thrive with the nonorganic type where police storm into horrible homes and find the kids all filthy and the baby weighing 7lbs at 9 months old ( this happened not long after my daughter had gotten sick ) .
Feb 07, 2007
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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wow... I didn't know this place still got some traffic. After about a month of me checking the message on this forum, i just said forget it and kept posting in the other forum... Quinn is now 12 1/2 months old. I am so very happy to announce that we have yet to get the g-tube. We are still failure to thrive and the pediatrician is just holding off on the g-tube because she managed to gain 8 ounces. But she's still really small. She's 18 pounds and short. We just got out of the hospital on Sunday. she was in for two days and two nights due to a horrible stomach bug that caused a fever of over 105 and diarrhea and severe dehydration. This would be her third hospital stay. We go to the GI on Thursday. I'm hoping to find some answers to her stomach problems. She is constantly in discomfort or pain and always has gas. She looks like an ethiopian child. Her ribs and back bone are visible her legs are thin as sticks, but her belly sticks out like a buddah belly. And she's ALWAYS sick. We go in for our sleep study on the 22nd. This might also be another reason why she does not gain weight well. Quinn did have a heart defect called ASD, but that closed up two months ago on its own. She also has sinus tachycardia. We've checked up on renal problems and that doesn't seem to be it and we've had a metabolic work up done. When you hear Failure to Thrive.. you kinda do feel inadequate as a mother. I hate it. Her occupational therapist started reading off her diagnosis to someone over the phone and i heard FTT and i just cringed... couldn't possibly be my child... it's hard. Anyways... momof4girlz... sounds like you've had quite a journey with your little Maggie. How is she doing now? -Sarah
Check with your
doctor first!