Posted By Posting
Nov 04, 2006
Infant with Lax LES, SEVERE GERD
Nissen Fundo for an infant
Our son was born 5wks premature. Stopped breating at 4wks, spent 3 days in PICU at local hospital. Diagnosed with SEVERE GERD (ph probe = 20%). Sent home with prevacid/reglan/apnea monitor. At 7 wks, admitted again to PICU with vomiting blood. After a blood tranfusion to stabilize low hemo count, he was put on a respirator and an endoscopy was performed. GI doc said the the Lower esophogeal sphincter (LES) was completely lax and stuck in a wide open position. Additionally, there were partial mallory weiss tears in his stomach where the stomach had been forced up thru the LES during reflux episodes. He upped Prevacid and reglan to max dosage and added Zantac and Carafate (to coat stomach and aid in healing the tears), and we are adding 1 tsp of rice cereal per ounce of breast milk. He reccommends that we proceed with a Nissen fundo as soon as the stomach heals in about 1-2 weeks. We've heard the condition often resolves itself on infants, but GI doc says GERD symptoms usually don't peak until 4 months and given the fact that he's already had 2 life threatening episodes as a result of the GERD, we shouldn't wait for body to outgrow condition. We are not fully aware of complications which may result from a Nissen fundo, and not sure of the occurance rates (in one ear out the other when speaking with the surgeon.) Should we be seeking 2nd opinion? Are there alternatives to NF operation? There is a surgeon in our area that comes highly reccommended and performs about 100NFs/year.
Nov 06, 2006
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
It does sound like the fundo would be the best for him. You don't want this to get any worse... It's weird because my daughter did the same thing as your son...she was full term, but she stopped breathing on me at 3 wks old and I had to take her to the hospital too... where she spent one week on the pedi floor and then was transferred to a NICU where she stayed for an additional week. She is now 9 1/2 months old and her problems are far from over... Before you go through with this Nissen... weigh all other options. I encourage you to get this second opinion... because like a lot of moms say, you have to be ready to trade one set of problems for another. I'm sure other moms will respond who have personally been throug this.. I haven't been through the nissen with my daughter... and like you, I will wait until it is a last resort.. that is what we are doing with Quinn. It has always been brought to our attention... -Sarah
Check with your
doctor first!