Pager Forum - General, Beginners and Infants

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Aug 29, 2006 baby quinn's mommy Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn	Coughing up purple blood I'm new here, but I have a very baffling question. Reflux has been so horrible for my daughter. She is now seven months old and has gone through 5 different formulas with the winning formula being Nutramigen. She started rice cereal at 5 months and veggies at six months. She has been eating fruits for about a week now. Quinn has only gained 2 pounds in four months. She has a gross motor delay and the pain from reflux has been her worst enemy. She is maxed out on both Reglan and Prevacid. Her pain seems to be getting much better. My husband and I are so happy because the doctor was talking to us about doing the Nissen Fundo and g/tube insertion surgery... so far, we haven't had to go that route. That is still an option if she is doest not start gaining weight a little better or if her painful episodes show back up. The pediatrician witnessed one of Quinn's painful reflux attacks and said that Quinn's reflux was the worst she has seen as far as her being in so much pain. Well, this is something I have noticed ever since she was three months old. When she was three months old, I picked her up out of bed one morning and I saw a stain of scattered purple dots where her mouth sits. I shrugged it off thinking that she probably just spit up and a cloth bled or something. A few weeks later I noticed it on one of her burp rags. And then a few weeks after that it showed up on a floor blanket. And then a week after that it showed up on another floor blanket. I was still convinced that it was a cloth bleeding. She's been doing this about every other week. It's ended up on her bibs. I thought she had been getting something in her mouth or something and so I've been watching her like a hawk! A few weeks ago she threw up into the burp rag I was holding and I saw it come out of her. That got me worried because now I knew for sure it was coming out of her. At her next visit I asked the ped about it and she said the only thing she can think it is is blood. But it comes out purple... which is very strange. It doesn't happen at any particular time or after any particular food or medicine goes into her body. And it couldn't be the pravacid because she started doing it before we introduced her to prevacid. We have a very hard time believing it is the Reglan because the reglan is a very diluted orange color. It's scattered purple dots... maybe not dots but something like that. Any clues? We don't think it is her meds or anything like that. What could it be? we have a GI appointment really soon... we will see what he thinks... I was wondering if anybody else has experienced anything like this. -Sarah
Aug 29, 2006 jkhallow Karen K Hallowell	It's the prevacid... if you page down you'll see several posts regarding this. Most of us have seen purple "dots" of prevacid spit up regularly or once in a while. It's very common but Dr's don't know b/c they don't live with it. Hope that helps.. don't worry... Karen
Aug 29, 2006 jkhallow Karen K Hallowell	Whoops... just read that you said it started afer prevacid. That's weird... b/c tons of us have seen this but had it be prevacid.
Aug 29, 2006 abbysmom Andrea: Mom to 3 crazy girls! Jackie (3/01) Payton (9/03) Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)	My dd Abby has done this a few times and it has been her Prevacid. Like jkhallow said, a lot of parents have seen this. If it happened prior to the Prevacid into., I don't know what it could be???
Aug 29, 2006 bigdaddy Liz, mom to Donnie 12/2005 Surgery for Pyloric Stenosis at 5 weeks old GERD since 4 weeks old Colic until 13 weeks old Delayed Gastric Emptying MSPI Surgery for Tubes and Adenoidectomy at 14 months old Anemic since 9 month check Febrile Seizures Speech Therapy MEDS: Zyrtec, Nasonex, Xopenex, Vitamins with iron, and back on Prevacid as of 12/2008	It is the prevacid. When it comes back up it looks like little purple granules, can be very scarry to see purple spit up though. When do you give it? We were told to give it to our son 1 hour before his first feeding so that it is digested before he takes any formula to reduce the chance of spitting it back up. We give it at 6:30-7:00 a.m. and he eats at 7:30-8:00 a.m. and I haven't noticed him spitting any up. Also in the evening he seems to be raspy so we give him Maalox and that seems to help. My son has been on Reglan too, how is your baby taking it? I hope everything works out, poor baby. Good luck, Liz
Aug 30, 2006 baby quinn's mommy Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn	You guys got me Ya'll have me very convinced that it is the Prevacid. It's so strange because I truly did notice it before the prevacid because I noticed it when she was in her bed at three months old. She started Prevacid at four months... perhaps at three months it was really blood because at this time she was having some horrible horrible pain... that's why we started her on the Prevacid. Jeeze... thanks for all the information. I really thought I was alone on this. Especially after my doctor was baffled. I'm so happy there's more out there and I am not alone! Quinn is doing great on the Reglan... except that I heard of some very scary side effects it could have. I asked my doctor about it and she said that Quinn would benefit more from taking the Reglan at this point than if she didn't take it. She seems to be keeping down bananas very well! She doesn't spit those up very much... I think there are only two foods in which she takes very well... bananas and sweet peas. I don't quite understand why... So when does this reflux go away? It's so trying at times. Especially introducing new foods. Is there a blog/journal page here? Again, thanks for all your advise... comments... ect. I really appreciate them. you're all so helpful! -Sarah
Sep 02, 2006 candice	I am also pretty convinced it is the Prevacid. My son also started spitting up the same purple thing and I was very scared thinking it could be blood. Something you could do to rule out blood if you are still worried about it is to take a sample of the spitup for your pediatrician to test. They can do it in 1 minute. I first took one of his vomitted pyjamas (sorry!) and the test turned negative but his pediatrician was still not sure because she tought the vomit was already too dry. She then gave me some hemoccult tests to take home so that I could collect the sample as soon as he would spit up the purple thing and take it to her practice for them to test it (you can take it a few days later. The important thing is to collect it as soon as they spit it up). Fortunately the second test was also negative. It was a relief to rule out the blood...if you are still worried I would try this. Good luck. Candice.

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