Posted By Posting
Dec 27, 2002
5 year old that may need a Nissen
Our 5 year old son has just been diagnosed with severe reflux. The diagnosis was given using a PH probe. Our next step is an endoscopy in Jan. 2003 where the surgeon is going to look for any damage to the esophagus and maybe biopsys. The following is a brief summary of our son: He was born with reflux. He has no developmental delays. He was put on Zantac and he remained on this medication for 3 1/2 yrs. He gained weight and height appropriately and is now in the 85th and 90th percentile on the growth chart. (I give God the glory) He did continue having cronic sinus problems and we reported these to his gastroentrologist, but not a lot of attention was paid to this issue. The vomiting still continued even while on the Zantac. We then saw an ENT at the recomendation of his pediatrician. The ENT recommended that his adnoid be removed and this was done in Nov. 2002. During the surgery, the doctor reported that our son had a very inflamed airway and microaspiration that needed to be controlled with more than just the very low dosage of Zantac that he was presently on. He then prescribed Previcid (30 mg-2 times daily) He did not vomit for almost six months. When the vomiting started again it was as if we were not medicating him at all. THe ENT reccomended that we see the gastro. that we were seeing before. We chose not to see the gastro again as we felt he did not see the whole picture with our son. We got a second opinion from another gastro. and he said our son had a bacteria growing in his stomach or classic reflux in which he recommended the Nissen surgery. The test for the bacteria (h-pylori) was negative. We are currently waiting for the testing in Jan. 2003. I would like to hear from anyone with a child in this age group that has had the Nissen surgery whether it was a positive or negative outcome.
Dec 28, 2002
Hi. I'm sorry to hear your son is having such a hard time. My first piece of advice is to make sure that the doctor who does the endoscopy takes biopsies. An esophagus can look inflamed but the biopsy can be normal and the esophagus can look normal but show inflammation. Surgeons are notorious for not taking biopsies and you could miss an important piece of information. Also, if he hasn't been tested for food allergies/eosinophilia, that can be done with biopsy but only if the doc is very experienced in eosinophilia. Food allergies can present very similarly to reflux but the biopsy would show eosinophils. However, thy can be patchy and it can be difficult to diagnose because of the patchiness. Also, your son isn't taking a motility medication like, Reglan, Erythromycin, or Bethanacol. I personally wouldn't go into surgey without trying EVERYTHING possible. Nissen fundoplication surgery isn't perfect. It comes with its own set of problems that can be worse than the reflux it is treating. There can be problems with swallowing, gas bloat, and worsening of any pre-existing dysmotility. Our GI will not recommend surgery unless a combination of the following are existing while taking maximum doses of both acid blocking meds (like Prevacid) and prokinetic/motility meds. 1) failure to thrive 2) significant aspiration and respiratory issues 3) significant, non-reversing esophagitis or Barretts esophagus 4) pain that interferes with daily life. Because the surgery is so far from perfect, I personally wouldn't head into surgery without meeting those criteria. I hope the endoscopy goes well.
Dec 28, 2002
tell me more
Hi. Thanks for responding.Could you eloborate on eosinophils? My son was tested for allergies several years ago but everything was negative. The neonatologist that read my sons test did want to try erythromyacin and prilosec together. The surgeon suggested that we do the endoscopy first. That seemed logical to me before putting him on all new meds. The bottom line with the surgeon was that we have tried alot of meds. and at max doses and were still not managing him. Do you have a child with reflux? It sounds as if you do. You seem to know alot about the testing . There is a part of me that says I can live with reflux some days and another part of me that says I never want to see my child go through another relapse again. I just found out about this web site and I really want to talk to others that know what our family is going through. Do most children that have reflux go through times when there seems to be no reflux? and then all of the sudden they start having symptoms again??? Also we tried reglan when he was two and we could not tell a difference but we were seeing a very very consertative gastro. and maybe the dosing was not enough???? Hope to hear from you soon.
Dec 28, 2002
Hi. I do have a child with reflux who has had a fundoplication. He has not done well post-fundo. If there had been any way to avoid the fundo, I would have. However, there wasn't a choice for several reasons including the severity of his esophagitis which had been closely monitored with frequent endoscopy as well as respiratory issues that weren't improving. Erythromycin will only help the stomach empty more quickly. The threory is that if the stomach empties faster, there won't be as much to reflux. Its very low dose (not nearly enough to treat an infection). I don't know much about eosinophils but there's a group at yahoogroups called The moms there are extremely knowledgeable about eos and reflux as many of the moms deal with both. You are right about reflux going in waves. Sometimes things are going well and then out of the blue, things get bad again. I just know that I would do anything possible to avoid fundo surgery. Good luck
Dec 29, 2002
some non-surgical, effective methods, that might be helpful for your son
I'm sorry to hear about your little boy's severe reflux. If you are interested in some natural non-surgical methods, that have helped many children & adults, please run the following tips by your son's doc. If his doc has no objections, try these. I'll also put some SINUS TIPS into the next message, since sinus & GERD are often related. Some GASTRIC REFLUX TIPS (without acid blockers): Please check with your doctor, first, before trying these tips to be sure they are safe, in your particular situation. GER=Gastro-Esophageal Reflux. (Gastro=stomach. Esophagus=food tube.) LPR= Laryngeal-Pharyngeal Reflux. (Larynx=voice box, containing the 2 vocal cords. Pharynx=throat, above the larynx. The larynx is above the trachea/windpipe.) Reflux=acidic or alkaline stomach material that backs up into the esophagus (food tube), causing any of these problems (at least): VCD/Vocal Cord Dysfunction/Laryngospasm attacks, cough, voice problems, asthma, globus (feeling of lump in throat), constant need to clear throat, much extra throat mucus, worsening of sinus condition, sore throat, laryngitis, voice problems, pre-cancerous conditions of throat &/or esophagus, etc. SOME GER/LPR CONTROL THINGS WE DO, that we learned from the excellent book: STOMACH AILMENTS AND DIGESTIVE DISTURBANCES, by Michael T. Murray, N.D. See page 9, References, in my website: and, also see GER/LPR info on page 5, and on LINKS page. PLEASE READ THIS GREAT BOOK. It may possibly be bought on-line, from Michael T. Murray?s website. Some of the following we learned from people &/or other books, &/or other good websites about voice, GER, etc. (1) DGL (De-Glycyrrhizinated Licorice) is one of our main methods of controlling the GER/LPR. We use Enzymatic Therapy brand DGL, shortly (about 20 minutes) before ALL meals (breakfast, lunch, supper, and snacks). The DGL does NOT cause high blood pressure, and does NOT cause fluid retention/edema, because a bad (steroidal) part of whole/crude licorice has been removed, leaving the DGL. Chewable DGL tablets are available at most health food stores, and at good pharmacies. DGL capsules are said to not be effective: The DGL tablet(s) must be chewed, to mix with saliva, to be effective. If a DGL tablet is too dry (which could cause a cough), one could put a few drops of water on the tablet, and then chew it up. Chew DGL tablet(s) just for a few seconds, to mix with saliva, shortly before (about 20 minutes before) EVERY meal, and if necessary, between meals (Read label directions). Chewing the DGL tablets for TOO long a time, may cause a burning sensation on the tongue & in the mouth. (I do not know if this is from the DGL, or another ingredient). The DGL seems to not only promote healing of throat, esophagus and stomach, but also seems to help prevent OUR reflux.(resulting in no more globus/lump in throat sensation, no more constant throat clearing, excess mucous, excess phlegm, no more NIGHT-TIME VCD/Vocal Cord Dysfunction/Laryngospams attacks, no more laryngitis, etc. for us) We like the taste of the plain, fructose-free, DGL CHEWABLE tablets, but for those who hate the taste, try mixing a crushed DGL tablet with a tiny bit of mashed organic banana, and then chew, to mix with saliva. Avoid any DGL that contains mint. (Mint?in all forms, can cause gastric reflux episodes. AVOID MINT!!). Here?s how to pronounce ?De-Glycyrrhizinated? Licorice: ?dee gl eye sir rise in eh ted? licorice. (2) We use Thayers brand of SLIPPERY ELM Throat Lozenges when we feel the need. (Soothing, coating, healing, nourishing). Slippery Elm (inner bark from a tree) also comes in teabag form, or in bulk, etc. as an herbal supplement. (3) We drink the occasional small glass of CARROT JUICE (organic, fresh) which soothes, coats, heals the digestive tract, is nourishing, and stimulates the immune system, with beta-carotene, soothing and coating PECTIN (a type of fiber), and other good nutrients. Carrot soup, cooked carrots are also good. Beta-carotene is heat resistant. Beta-carotene later is turned into Vitamin A inside us. Do not overdo on carrot juice. If your skin turns orange, drink less carrot juice. Avoid beta-carotene pills -- too potent (can harm the liver, if one has liver problems). (4) We tried elevating the head of the bed a few inches, by putting 6 inch to 8 inch BLOCKS, ON THE FLOOR, under the head end of the bed. This creates a slant (tilt), where the head is 6 to 8 inches higher than the feet. This helps some people, but not all people. (Check with a pediatric Gastro-enterologist, about raising the head end of a bed of a child, or a crib of an infant). Also, see (16) about a special GERD PILLOW, for adults. (5) We try NOT TO BEND OVER too often, and we try to AVOID STRAINING (Valsalva maneuver). We AVOID LIFTING HEAVY objects. (No weight lifting!) (at least until after no more reflux symptoms for 3 months). Sit without any pressure on the abdomen or stomach (knees lower than hips). Avoid running (shakes up the stomach). Avoid gymnastics, etc. Walking is best, until fully recovered. (a) If CONSTIPATION is causing any straining, see Ref.15,18,23,24,25 on page 9 for ideas about gently treating constipation, including eating whole grains, not white (de-natured ones), etc. For us, exercise, increased water intake, acidophilus/bifidus, digestive enzymes, avoiding junk food, improved diet, chewing slowly (takes will power!), eating when not under stress or angry, etc., all are helpful. (6) NO MORE TIGHT pants, belt, corset,--AVOID TIGHT CLOTHING, avoid tight elastic around waist, etc. (7) We try to not eat too much junk food. Some people avoid acidic food, while others need to eat acidic food, if their stomach is not producing any (or enough) acid. (It is good to avoid acid, if one has an ulcer.) These gastric reflux tips methods often can help to heal ulcers. Some people need betaine hydrochloride supplements, which becomes HCl/hydrochloric acid, or, some use vinegar (acetic acid) in salads, or mixed with water, while others need to avoid eating excess acid. Each person is unique. We avoid all artificial sweeteners. Anyone with diabetes can read the excellent book Reversing Diabetes, by Dr. Julian Whittaker, M.D.. Diet soda pop contains the harmful artificial sweetener Aspartame (Equal/Nutrasweet), which can cause WEIGHT GAIN, HEADACHES, UPSET STOMACH, BLURRED VISION, BLINDNESS, TWITCHING, SEIZURES, BRAIN TUMORS, HYPERACTIVITY, MOOD SWINGS, ETC. Also, soda pop often has strong acids, plus other harmful artificial ingredients. Plain water, gentle herb teas, certain fruit juices (diluted with water, to prevent dehydration), brown-rice-milk, etc. are healthier substitutes for soda pops. We try to avoid artificial ingredients, including fake fats (like Olean, Olestra, etc.), because these can greatly hurt the digestive system, and prevent absorption of vital nutrients, such as fat-soluble vitamins (A, D, E, K) from foods. These fake fats also prevent digestion and absorption of needed fats & oils, used to repair myelin nerve cell sheaths (made of fatty material, mostly cholesterol). Hormones are also made of mostly cholesterol. Avoid no-fat, or extremely low fat diets. Fats & oils (organic olive oil, organic sesame oil, organic butter in small amounts, organic nuts, etc.) are needed to produce hormones, and to produce myelin sheaths for certain nerve cells. Diets too low in fats & oils, can cause neurological (nerve) damage, and hormonal imbalances. (8) We try to drink more water, to prevent chronic dehydration. We like hard (nicely mineralized) well or spring water. We do not drink distilled water (soft water, no minerals), because it can leach minerals out of our bones, possibly contributing to osteoporosis. (See Ref.18,23, on page 9.) We avoid water softeners (chemicals) because they can be toxic, and because good minerals help keep us healthy. People with KIDNEY PROBLEMS &/or GLAUCOMA, etc. should ask their docs how much water is safe to drink, since too much water can be dangerous for them! (But, dehydration can cause problems also.) (9) We use ACIDOPHILUS/BIFIDUS ( edible beneficial bacteria which keep bad YEASTS away, such as Candida Albicans, formerly called Monilia). ACIDOPHILUS/BIFIDUS also can eat or control some bad bacteria, and some viruses. The acidophilus/bifidus are also called PRO-BIOTICS and are beneficial intestinal flora (mainly for the large intestine). We keep the jars refrigerated, but not too cold. These are available at health food stores & pharmacies. (See Ref.14,15,23,24,25, on page 9). Acidophilus/bifidus can re-populate the large intestine, with good bacteria, after antibiotics &/or steroids, etc. have killed off these good bacteria! Some of us have to continue eating the acidophilus/bifidus (daily, or from time to time), but the results seem worth the effort to us. Yogurt and buttermilk contain similar beneficial bacteria, but are milk products, so see (11) below about milk products. (10) We use DIGESTIVE ENZYMES. My husband likes Acid-Ease by Prevail, which contains Slippery Elm (inner bark), Marshmallow Root, Gamma-Oryzanol (from Rice Bran Oil), and the plant enzymes Amylase (digests starch), Lipase II (digests fat), and Cellulase I (digests cellulose from plant cell walls). The Acid-Ease does not contain Protease, which can be very irritating to ulcer/GER folks. The Acid-Ease is NOT an acid blocker. It is not an antacid. It soothes, coats, nourishes, and promotes healing. Its enzymes help with leaky gut syndrome. I use Total Enzymes (which does have Protease, a protein digesting enzyme) by Nutri-West, a company that sells only to health practitioners (Chiropracters, Physicians, and others), who can order, at cost, by calling 1-307-358-5066. Digestive enzymes are NOT FOR EVERYBODY, but are helpful for MANY people. (11) My husband has found that AVOIDING MILK PRODUCTS helps him feel less congested, with less mucus in throat. Milk and milk products can cause gastric reflux episodes. Brown-Rice Milk (look for gluten-free) can substitute for milk (but not for babies!). Gluten is in wheat (includes spelt & kamut), rye, oats, barley, & buckwheat. Read labels to avoid hidden gluten, in some soy sauces, gravies, grain alcohols, beer (barley malt), etc. People with Celiac Disease need to avoid all foods containing gluten. BROWN RICE (organic) is gluten-free. Corn is gluten free, but is very allergenic (allergy causing), so avoid corn. Avoid millet, at first, because there is disagreement about whether millet is safe or not, for Celiac patients. MILK MAY CAUSE MORE ACID to be produced, IN THE STOMACH! I occasionally eat milk products, like yogurt, cheese, whipped cream, or my ACIDOPHILUS/BIFIDUS, which is mixed with goat milk powder. So, at these times, I take LACTASE ENZYMES, to digest (break down into easily absorbed small molecules) the milk-sugar called LACTOSE. Many people (due to heredity &/or disease) have Lactose intolerance, where the small intestine does not secrete the lactase enzyme. Result is that the milk-sugar (lactose) travels further down the small intestine than it should. Then, bad bacteria eat the lactose, giving off lots of gas (the gases are by-products of the bad bacteria?s own digestion process), and this causes folks to get bloated, gassy, have diarrhea, and cramping. I use Lactaid brand lactase enzymes, and it works for me. Ordering direct from them can save money. (12) Using the above methods has almost completely freed my husband of needing to use Tums, and seems to be nicely controlling his and my GER/LPR. We have never used acid blockers. ACID BLOCKERS CAN HAVE DANGEROUS SIDE EFFECTS: Some examples are: Acid must be present in the stomach, in order for the stomach to make a substance called Intrinsic Factor. Intrinsic factor must be present with Vitamin B 12, in the stomach, for absorption of Vitamin B 12 to happen, in the ileum (last part of the small intestine), I believe. Acid blockers therefore prevent absorption of Vitamin B 12. Malabsorption (lack of absorption) of Vitamin B 12, causes NERVE DAMAGE (pain, numbness, pins & needles sensation, etc.) in the peripheral nerves (outside the brain & spinal cord). This is called PERIPHERAL NEUROPATHY. For details about this problem, see the Peripheral Neuropathy forum at If Vitamin B 12 continues to NOT be absorbed, eventually there can be NERVE DAMAGE to the Central nervous system (brain & spinal cord). ALSO, the minerals calcium, iron, zinc, other minerals, and important trace minerals, etc. cannot be properly absorbed, when there is no acid in the stomach (due to acid blockers, etc.). AND, protein does not start to get properly digested (broken down--eventually into amino acids), in the stomach, when there is no acid in the stomach. Doctors and pharmacists can advise about VERY gradual(slow) tapering down (weaning) schedules (when and if safe) for the acid blockers. Some acid blockers, when stopped too quickly, can cause rebound acid secretion in the stomach, resulting in excess hydrochloric acid secretion. The REBOUND ACID SECRETION often causes worse GERD symptoms! ALSO, SOME FORMS OF REFLUX ARE NOT ACID REFLUX, but are ALKALINE REFLUX, (bile is alkaline). Besides refluxed stomach acid (HCl/hydrochloric acid), Pepsin (an acidic proteolytic/protein digesting, enzyme) & bile (alkaline) can irritate & damage: the esophagus, throat, vocal cords, & lungs. Acid blockers do nothing to stop alkaline reflux!! (13) Do not drink ICY COLD DRINKS, and AVOID VERY HOT DRINKS. Use room temperature drinks, or slightly cool, or warm, but not ultra-hot. Extremely cold or hot liquids can irritate the stomach, which is bad for ulcers &/or gastric reflux. (14) Ask physical therapists, chiropractors, osteopaths, etc. if they know any safe adjustments that might lessen GER/LPR, if you wish. (15) Read (by Dr. James A. Koufman) PATIENT INFORMATION SHEET ON REFLUX by Center for Voice Disorders of Wake Forest University. Here?s a link: Dr. Koufman was a pioneer in showing the connection between stomach reflux (can be acid reflux OR alkaline reflux) and breathing problems! (16) Some have found a special (large) GERD pillow helpful for preventing GERD episodes while sleeping and while lying down. Here is a link to the Prop up pillow website: (17) Avoid harmful chemical air pollution, which can aggravate gastric reflux. See page 5 of VCD website for more about this. (18) Using the above methods, in addition to the SINUS SURVIVAL tips, has helped us to prevent VCD attacks, in us. (19) Please check with your doctor, in advance, to be sure that it is OK for you to try these tips, in your particular case. Also, please get monitored by your doctor, to be sure that no more damage to the throat, esophagus, stomach, vocal cords, lungs, etc. is happening, from possible SILENT gastric reflux. Pregnant or nursing ladies should check with their doctors, before trying any of these tips. Avoid any herbs, foods, etc. that you may be allergic to. Check with your doctor and pharmacist, to be sure that there would be no harmful interactions between any of your medications, diet that you may be on, and any herbs, foods, etc. mentioned in these tips. Check with your doctor, to be sure that these tips would not interact badly with any medical condition you may have. These tips help my husband and me (adults). Some of these tips may be OK for children, and others may not be OK for children. Check with your doctor! Babies with gastric reflux need DIFFERENT treatments, not these tips (except for raising the head end of the crib, if your doctor says it is OK to do this, etc.). Check with your doctor! I hope these help. See next message for helping his sinuses, too. Sincerely, Carol
Dec 29, 2002
some helpful SINUS TIPS for you to consider for your son
Some SINUS TIPS: Please check with your doctor, before trying these "tips", to be sure that they are safe for you to try, in your particular situation. SOME SINUS SURVIVAL THINGS WE DO, that we learned from the excellent book: SINUS SURVIVAL, by Dr. Robert Ivker, D.O. See page 9, References, in my website: PLEASE READ THE BOOK SINUS SURVIVAL, by Dr. Ivker!, for MORE GOOD IDEAS!!! (1) NASAL IRRIGATIONS: THIS IS DONE WITHOUT ANY CHOKING, AND WITHOUT SNIFFING THE LIQUID UP THE NOSE! My husband does these once a day. I do them 2x a day. When I first did them, I needed to do them 4x/day. We try to avoid doing them within 1 hour of bedtime (or lying down), because some of the irrigation fluid drains out later on, and we prefer to be awake and not lying down (when possible), to gently blow the residual warm salt-water out of each nostril. Keep tissues (unscented) handy. (a) First, we each bought a NETI-POT, an 8 ounce little ceramic teapot without a cover, from a health food store. Some people who do Yoga use neti-pots (hence the East-Indian name NETI-POT). This avoids potential latex allergy from rubber bulb syringes! Also, this is a gentle gravity method, with no dangerous high water pressure. And no electricity is needed! (b) We put about a level half a teaspoon (1/2 teaspoon) of plain (non-iodized) salt (sodium chloride, NaCl, avoiding additives) into the neti-pot. We like PLAIN, ADDITIVE-FREE, NON-IODIZED sea-salt (from health food store). (c) We then add a little hot water and stir, to dissolve the salt. We use well water (no chlorine, no fluoride). Distilled water is OK, for the nasal irrigation, but we do not drink distilled water, which can leach minerals (like calcium) out of the bones, contributing to osteoporosis. (d) Then we add a little cold water, and stir, to make the salt water warm, not hot. (We experimented, until we found the most comfortable degree of warm temperature?tepid/lukewarm.) (e) Then, we add warm water to fill the neti-pot, to the brim, and stir. (f) I stand in front of a sink. Then, I lean my upper body FORWARD, over the sink and tilt my head slightly to the right, so my RIGHT nostril is a bit higher up than the left nostril. I wear a bathrobe, because this can be a little messy (but it is worth it!!! The sinus relief is wonderful!!!, like lessening post nasal drip, lessening stuffed nose, lessening phlegm, soothing and healing sore & dry throat, promotes sinus drainage, etc.). If it feels like fluid is getting into one or both ears, try keeping the head less tilted (sideways), so that one nostril is just A TINY BIT higher than the other one. But still lean FORWARD over the sink, to prevent the fluid from going down the throat. If it is hard on my back to lean forward, I put a folded towel on the edge of the sink, put my left fore-arm on towel, to support my back, and then I lean forward over the sink. (g) I put the neti-pot spout INTO my RIGHT (upper) nostril, and gently, slowly, pour about 4 ounces (about half of the 8 oz. neti-pot) (it is a guestimate) of the warm salt water into my right nostril. The fluid pours or drips out of? my LEFT (lower) nostril! (into the sink). IT TOOK A LITTLE PRACTICE TO KEEP THE FLUID FROM GOING INTO MY THROAT, BUT I QUICKLY LEARNED BY PRACTICE! LEANING FORWARD, OVER THE SINK, HELPS ME TO KEEP THE FLUID FROM GOING DOWN MY THROAT. During this nasal irrigation, I must breathe through my open mouth. (I can talk, if necessary, but usually I do not). (h) Then, I gently blow both nostrils (blowing out the warm salt water, out of both nostrils at the same time), and then lean FORWARD, over the sink again, slightly tilting my head to the left, so my LEFT nostril is a bit higher than my right nostril. Then, I put the neti-pot spout INTO my left (upper) nostril, and gently, slowly, pour the rest (the last 4 ounces, approximately) of the warm salt water into my (upper) left nostril, letting it pour or drip out of the right (lower) nostril, into the sink. (i) Then, I gently blow both nostrils (blowing out the warm salt water, out of both nostrils at the same time). Then, I bend over, carefully, (sitting or standing) and gently blow each nostril, one at a time, while head is low. Then, I stand up, or sit upright, and gently blow each nostril, separately. (j) Finally, I wash out the neti-pot, using hot water and UNSCENTED gentle, health-food- store dish detergent (unscented soap is probably OK too). I thoroughly rinse the neti-pot with hot water, and let it air-dry upside down on a paper towel, in a dish drainer. (k) After a little practice, nasal irrigations now take only a couple of minutes to do! This neti-pot method uses gentle gravity, (possibly safer and more comfortable than some other methods). My husband and I actually look forward to doing these nasal irrigations, because they are so helpful, soothing, and healing! (2) WE HUMIDIFY THE AIR AT NIGHT in the bedroom, while sleeping, USING A VICKS (or any good brand) HOT WATER (warm mist/steam) VAPORIZER?NO MEDICINE, JUST WATER & A LITTLE SALT TO GET THE VAPORIZER GOING. (HOT water seems to prevent mold, in our vaporizer.) This has very much helped to moisten, soothe, and heal our noses, throats, and sinuses. The high humidity prevents throat from drying out, even if mouth breathing while sleeping. Dry air used to make throat feel sore & hurt. The vaporizer prevents & treats this problem. We put the hot water vaporizer about 7 feet away from our noses, but directed towards our noses. We avoid cool mist humidifiers, because they may breed molds. A pharmacist warned me to avoid sonic cool mist humidifers, because he said these can put tiny irritating or toxic particles into the moisture droplets, which then get inhaled. Even if you live in a high humidity area, if your indoor heat dries out the air, try using a warm mist vaporizer. (3) WE USE AN AIR CLEANER only AT NIGHT. We bought a negative ion generator because it is noiseless and less expensive than a HEPA filter. We put it on, in the living room, at bedtime. When we tried it in the bedroom, it gave off too many negative ions (too drying, too irritating, caused insomnia). By keeping it in the living room, just the right number of negative ions drift into the bedroom, cleaning the air nicely, preventing stuffed nose. (We only operate this air cleaner in a room that we are not in.) We keep the gadget away from metal, and we do not touch it while it?s on, because MUCH OZONE would be produced if it is close to metal, or if it is touched. Ozone, in large amounts, is toxic, drying, irritating. ( Ozone is bad stuff, except when created in small amounts by nature, like from lightning.) AVOID AIR CLEANERS THAT SAY THEY ARE OZONE TYPES. In his book, The Healthy House, John Bower writes that even negative ion generators may produce a very small amount of ozone, but in very tiny, acceptable amounts., The only time I ever smelled ozone from our neg. ion generator, was when I touched it for more than a couple of seconds. John Bower writes that some very sensitive people are bothered by resins in HEPA air filters. Also such air cleaners create a breeze, and make a sound. (4) I use a Breathe-Rite nasal strip while sleeping, to help keep my nose un-stuffed, and to lessen snoring. CAUTION: Packaging of this product contains natural rubber latex which may cause allergic reactions. IF YOU MIGHT HAVE A LATEX ALLERGY, DO NOT USE THESE BREATHE RITE NASAL STRIPS! One can call the company at 1-800/858-NOSE(6673) to ask if the Breathe-Rites contain any other ingredients that one might be allergic to. (5) Read the book, THE HEALTHY HOUSE by John Bower, to get ideas about how to greatly improve your air quality, at home, at school & at work. Indoor air pollution causes sinus problems. OPEN YOUR WINDOWS to let in fresh air. AVOID BREATHING IN TOXIC CHEMICALS, MOLDS, & IRRITATING DUSTS. See examples on page 5, about Environmental & Occupational Health, Sick Building Syndrome, & Building Related Illness. (6) These SINUS TIPS, along with some GASTRIC REFLUX TIPS, and improving AIR QUALITY, can often greatly lessen (or eliminate) both VCD attacks, and similar Upper Airway Dysfunction, squeezing shut, attacks! (like Laryngochalasia, etc. See PAGES 5, 3, 4, 9, and links page, of These SINUS TIPS (& GASTRIC REFLUX TIPS & IMPROVING AIR QUALITY) can also be helpful for people with asthma, voice problems, etc. (7) Before trying these "tips", please check with your doctor first, to be sure that these tips are OK for you to try, in your particular case. I wish your son the best! Good luck to you. Sincerely, Carol
Jan 04, 2003
Jan Gambino Burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
My daughter had a nissan too.
Carol, It sounds like you have been looking for answers for a long time. I am glad you have a team of doctors who are helping you get to the root of the problem. Surgery is a big decision. You may want to read the article called Focus on Surgery. It is on this website or it can be ordered from PAGER. When my daughter had a nissan, it was because she was aspirating, failed medical treatment (the maximum dose of medicine didn't help), we had ruled out allergies, food allergies, esinophillic allergies and she was failure to thrive. Basicly, we had run out of options. The surgery was rough and the recovery was not too much fun. But, in the end, it was the best thing for her. she started gaining weight and thriving like never before. We were not able to take her off GI meds completely but the respiratory symptoms improved greatly. I would do it over again in a minute. It is important to make sure your son is a good candidate for surgery...see the Focus on Surgery article. Make sure you have an experienced pediatric surgeon who has done many, many nissan. Make sure you are ready. E-mail me privately if you wish. Jan
Jan 21, 2003
My six year old son had a fundo
My six year old had a fundo after having severe reflux for his entire life, with aspirations and recurrent pneumonias as a baby. His reflux did not resolve with medications. His biopsies showed Barrett's metaplasia, which did not resolve with PPI's or H2 inhibitors, so it was a condition that at the time was an automatic indicator for fundo surgery. He did have an open fundo rather than one by laparoscopy, so his recovery was more complicated and required a 7 day hospital stay. Although the fundo did not clear the reflux 100%, and he still needs Pepcid daily, it did clear his Barrett's and he is otherwise symptom free. Was it the right thing to do? Absolutely, no question for his situation. Whether it is appropriate for yours I wish you luck in your fact finding and decision making.
Check with your
doctor first!