Posted By Posting
Apr 21, 2003
rebeccasmith@lycos.com
Burping a baby with a fundo & G-tube - - HELP!!
I am desperately seeking advice on how to burp my son. He had a Nissen fundo 2 months ago & also had a G-tube placed at that time. The tube was recently changed to a Mic-key G Button & ever since then we have found it IMPOSSIBLE to burp him when he feeds by mouth (he is breastfed). Our GI suggested laying him on his back and lifting his rear end up so the air can get to the button - this does not work. The air starts to come out, but then stops halfway up the tube. We end up sitting him up, draining the contents of his tummy completely, just so we can get to the air on top. This is so frustrating for him & he is starting to refuse to feed at all. One of the purposes of the surgery was to get him to eat better (he had very bad reflux), but it seems the opposite is happening. Can anyone help with this problem???? Rebecca & Tryyn
Apr 22, 2003
rebeccasmith@lycos.com
oops!
Didn't mean to submit that 3 times!
Apr 22, 2003
Anonymous
Hi. I have had very similar problems with a MIC-Key and decompressing the stomach. In my case, my son can burp and vomiting so access to his stomach to decompress isn't as important anymore. However, if it was, I'd ask his surgeon to change him back to the kind of tube that worked to vent him even though the button is much nicer to have.
Apr 24, 2003
Erika
This works for us
My daughter also has a nissen & g-tube with Mickey. She was very premature and just came home from the hospital last week. What we have found to work so far to burp her is to put her on our lap (lying down) and then put the syringe at the end of the tube down below her. All the food has to run out of her stomach into the syringe first, but then the air finally comes out and she actually pushes to get it out faster. Then we put the tube back up above her to allow the food to run back into her. I don't know if this will work for you as it sounds like your son doesn't like having his tummy drained. So far our daughter does fine with this and continues to want to take bottles. The hard part is that for an hour or so after she eats, she keeps wanting to push her food back up into the tube, and she screams while doing that. It seems that if you make it hard for her to do that, either by clamping the tube or putting the syringe up high, she screams for a shorter period of time and eventually gives up. If you get any better ideas on burping, I would be very interested to hear them.
Apr 25, 2003
rebeccasmith@lycos.com
response for erika
!So there is someone else out there with the same situation! This is basically what we have been doing, but it seems that once we get the food out, the air just sits there & will not come out. Do you lay her on her back or tummy? Also, sometimes when we put the food back down, he has a tendency to retch. THEN the air finally comes out! Does your daughter retch a lot? The capacity of my son's tummy seems to have been reduced a lot by the surgery and it's been a struggle to get emnough milk in him for growth. He was also VERY premature (24 weeks, 1 pound 5.7 ounces), but is up to almost 15 pounds. Congratulations on bringing your daughter home! These tiny babies are a lot of work, but worth every second! Just remember to take care of you too. It's good that you had the surgery while she was still in the hospital. We had three looong months of dealing with reflux at home before we had the Nissen. I am still not sure it was the right decision, but our son definitely smiles a lot mor these days. Good luck & take care! Let me know if you discover any other tricks!
Apr 26, 2003
Anonymous
Thanks Rebecca!
Thanks for your response. I usually put her on her back on my lap, then roll her gently side to side (this was a tip from somewhere, I forget where). She seems to do best when laying mostly on her left side -- the side her button is on -- it seems she can push stuff out most easily that way. She does not retch but is VERY fussy and is always trying to push her food out the tube, so after she eats (and gets burped) we clamp it, and that seems to help. I think she is still really uncomfortable with the button in her stomach, seven weeks after the surgery, and I believe she is actually trying to push the button out altogether. I am really hoping she learns to burp the natural way soon, so we can get rid of the button. She was very premature also, 26 weeks, and only weighed 1 lb. 4 oz. so not much less than your son. She is a twin, and her brother was a little bigger (1 lb. 10 oz.), does not have reflux and is already over 8 pounds. Our daughter is growing more slowly and is at 6 lbs. 4 oz. as of yesterday's doctor visit. But I am very happy that she is eating all meals by mouth and growing, even if slowly. When she was younger she had these awful bradycardic/apnic spells (which is how they diagnosed her reflux). Now she just fusses pretty much whenever she is awake -- I mean, she SCREAMS her head off! But more and more she has calm alert periods, so perhaps she is feeling better. Anyway, congrats to YOU on getting your son so big! That's wonderful. Let me know if you find any other helpful information on doing this venting. It doesn't seem like the docs know very much about day-to-day practical issues when it comes to this stuff.
Apr 27, 2003
Don and Marianne Bates -- Northern VA
To Rebecca and Erika
We've had similar problems with our son, too. Our son, now 29 months, got his first nissen and g-tube, at seven weeks. He was full term. He transitioned to his mic-key button about one month later. For us, then and now, what worked best was to sit Sam on our lap and hold the syringe (connected to the tube that connects to the g-bute) high. When Sam cries a lot, it normally helps to Burp him this way (my wife and I call it "venting" him :)). Sometimes it helps to push on his belly at the the same time too. Hope his helps. Don and Marianne Bates Don.Bates@verizon.net pawprints.mrb@verizon.net
Apr 30, 2003
Anonymous
Burping
I too have a child with a Nissen (revised from Thal) and G Tube. I did have a horrid time trying to burp him. On the advice of his GI, I lay him flat (raising his rear did not help us) and his air floats. Sometimes I move the button around and that gets out more gas. If they are having extended periods of gas, you may want to contact the surgeon or GI. I was told it was ok to leave the line open for extended periods becuase of this. Another thing you may want to ask for is Farrell Bags. I have used them in the past and they are helpful, they are an out for gas. Carla Williams PAGER Volunteer
May 12, 2003
Erika
Another response to Rebecca
I thought you might be interested to hear this. We finally brought our daughter in to see the surgeon who placed her button and did the nissen. He asked how many meals she was taking by mouth and I said, all but the one she sleeps through at night. Well, to make a long story short, we had gotten some bad advice. He told uis that she did not need to eat on a schedule, that she could be fed as much as she wanted, provided she didn't gag or retch, and that we did NOT need to vent her via the tube, if she could tolerate not being vented. She has not been vented for the last 5 days and seems to be doing just fine. She still has crabby times, but she had those even when we were doing our best venting. If she keeps this up, she will have her button removed in a month. We are sure hoping that's the case! Mealtimes are much more peaceful now, and she sleeps better and has fewer fussy periods during the day. She passes a lot of intestinal gas, but with the mylicon every meal, she seems fine with that. Anyway, there you go! Good luck.
May 14, 2003
rebeccasmith@lycos.com
For Erika, again
WOW - that's great! We actually just had a visit with the Gi last week & they took out the button & replaced it with another tube, which is supposed to be "easier" to vent. No such luck - we are actually having a harder time! We keep thinking there must be something we are doing wrong. He is sleeping terribly at night - fussing until you pick him up and then he passes lots of gas. This happens up to three times an hour! Since he is breastfed, I am trying to pinpoint something in my diet. But since I am not eating anything different than ever before & this problem started after the surgery, I still think it has something to do with the fundo/tube situation. I'd love to try letting hime feed by mouth only. Right now he is only taking between 1-2 ounces though & at 15 1/2 pounds, that just would not be enough! Unless he fed all day long! On the bright side, the GI is getting together a "feeding team" and we will be working on getting him onto solids soon. I hope your daughter keeps feeding well - you must be so relieved! Good luck & keep me posted!
Jun 11, 2003
Erika
Sorry to hear
Rebecca, I am sorry to hear you are having such a hard time with the venting. Our daughter has always passed a lot of gas, both when we were venting and after we stopped venting (the amount didn't change). So, I would suggest that perhaps his passing gas may not have anything to do with whether you are venting him enough? It might just be that he is gassy. Are you giving him Mylicon drops? They were recommended to us -- it helps break up the big gas bubbles into smaller ones so they are less painful. It's available over the counter and was recommended by the surgeon for our daughter. The latest news on our daughter is that her button will probably come out at her mid-July pediatrician visit, assuming she is still gaining good weight -- she is certainly outgrowing outfits, and eating as much as her brother who is bigger, so I think she will be fine. I am excited for her to get rid of the button, because we have had a terrible time with granulation tissue, and also occasionally if she is sleeping in a weird position the stoma will leak all over her clothes and bedclothes. She is hopefully going off the Zantac and Reglan very soon, I am just waiting to get clearance from the surgeon. So, things are lookng a lot better. I truly hope they start looking better for your son too, the feeding team sounds like a great step in the right direction.
Jun 12, 2003
Deb McK
I dont know if this will help you are not, but my 34 month old has to stand up to pass gas after her 2nd fundo. Sometimes she will hold onto us or a chair or something and bounce until it all works its way out. She hardly ever passes gas lying down. Deb
Check with your
doctor first!