Posted By Posting
May 21, 2003
Carol
new motility problems?
Have any of your children developed other forms of dismotility once their GERD was corrected with a FUNDO ? My son has had 2 FUNDOS, the first was a disaster, almost killed him. It left him with massive adhessions. The second FUNDO was sucessful. However, now he has Colon Inertia! Not fair! Has anyone else had Colon Ineria after multiple FUNDOS ??
May 21, 2003
Don Bates - Northern VA
motility and FUNDOs
Carol, I'm not sure what Colon Inertia is, but I can probably guess from the name. Our son has also had two fundos and has motility issues, too. He is now 2 1/2 years old. We're finding that as he is starting to eat more, his gagging is less and he can take more with each feed (and the constipation is less severe, too). Our son takes Reglan for the motility (as well as Milk of Magnesia for the constipation) and both seem to help. Many others have had problems with Reglan, but it seems to work for us. Hope this helps. v/r Don Bates
May 21, 2003
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
Our issues
My son is three years old. He has had a pylorotomy, Thal and Pyloroplasty, Nissen and G tube. He now has Dumping and Gastric Bile Reflux. If you don't mind my asking...What is colon ineria? Carla Williams PAGER Volunteer
May 23, 2003
Carol
Colon Inertia
Colon Inertia is when the Colon stops functioning or barely functions. The result is horrible cramping, constipation and many ER runs. My son is 14yrs. old, besides the intense physical pain, it is very embaressing for him. When he gets impacted(due to inertia) it causes him to retch. Since he can't vomit due to his Fundo, his retching is a medical emergancy. Not a pretty picture. I'm trying to find out if others have had similar complications, or if this mess is a result of the screwed up first Fundo.
May 26, 2003
Anonymous
Dysmotility
My son is also 14 and has had multiple (4) fundos followed by reconstruction of the esophagus and stomach. Prior to the failure of the 4th fundo, he had dumping syndrome so I can relate to that Carla. After that failed, everything seemed to slow and although he has slow motility, he doesn't have true problems with constipation. His usual pattern is to go once every 2-3 days which is OK for him. When things start to worsen with his motility, he actually goes more frequently and has almost constant gas and reflux. Not knowing the why and not being able to solve the problem is one of the worst feelings. Spencer just started taking Zelnorm which we are hoping will help improve his motility. Patti
May 26, 2003
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
Patti
Fancy seeing you here! :) That is interesting you say Spencer has gas. I wasn't sure if I just had a tootin' tom or it was the dumping or the bile. What causes the excess gas with the duming? What were you told about carbs? I was told more and then Tricia said less. I have emiled the doc with no word back. I was just interested. What things does Spencer eat? I am toying with offering food to Gage. Thanks Carla
May 26, 2003
Anonymous
Carla, Actually Spencer doesn't have dumping now. His motility is very slow. When he did have dumping we were told low carb, high fats. If he had to have carbs, they were to be complex as opposed to simple carbs and he defnitely wasn't allowed to have any sugary drinks. At this point, his eating is pretty near normal. I'm a bit brain dead but what testing was done to diagnose the dumping and bile problem? I can't remember though I'm sure you told me before! Patti
May 26, 2003
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
Patti, again
Patti, How do I figure out the difference between complex and simple carbs? The GI tried to explain it to me in matters of chemical bonds, but that was so over my head. I have had some bio, chemistry...forget it! LOL The dumping was diagnosed first by his symptoms then a modified gastric empty. If I remember correctly, his time was 75% in 30 mins strictly tube fed for the test. The bile reflux...The yellow we get in his tube, his symptoms and the number it did on his stomach. He also said the pylorus was "absolutely enormous". Carla
May 26, 2003
Anonymous
Carla
Carla, The dietician gave us a diet for the dumping which was designed to maintain normal blood sugars. The doctor also calculated a dose of corn starch based on Spence's weight at the time and he got that with meals as well as any time he was hypoglycemic. If I can find the diet, I'll e-mail a copy to you. Do you check his blood sugars at all? Have they ever been checked? Just curious because that was a huge problem for Spence. Bile can do a number on the stomach and esophagus. Are they giving him anything for the bile? Spence gets Carafate before bed which binds to the bile salts. Overnight seems to be his worst time of day for bile. He can also take Carafate anytime he needs it for problems with bile. Sometimes it helps, sometimes it doesn't. Patti
May 26, 2003
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
Patti...:)
Patti, I would greatly appreciate seeing that diet! I don't know why, but we are only supposed to use pectin, no corn starch. They explained something about molecules, again over my head. Gage was on Carafate but once he was switched to continuous feeds they had me stop it since we can't do the one hour before eating or two hours after eating. The hopes are that since food is always there he doesn't need the carafate anyhow. He is supposed to go to Cincy in October to get dilated. Carla
May 27, 2003
Carol
Dumping?
Hi Patti, What is dumping? Trying to figure out if David has that problem too. Carol
May 27, 2003
Anonymous
Dumping
Hi Carol, Dumping is when the stomach empties too rapidly. When the food arrives in the small intestine the body responds by secreting a large amount of insulin. Blood sugars are very variable from a normal fasting blood sugar very quickly rising to a very high blood sugar then dropping below the fasting blood sugar. The symptoms usually seen besides the hypoglycemia are stomach cramping and rapid explosive diarrhea related to eating. I hope this helps. Patti
Check with your
doctor first!