Posted By Posting
Jul 19, 2003
Sara in Fairfax
G-tube help please!
If your child has had a G-tube, please tell me when it was put in. My daughter is 5 months old and has, I fear, learned that the bottle causes pain and discomfort. Now, instead of crying during eating, she will cry when she sees the bottle. She will not eat or drink anything anymore. The pediatricians advise me to squirt pedialyte into her mouth by syringe, but obviously this is not a long term solution. I would like to know more about the G-tube and if anyone has any suggestions for avoiding one. And yes, I have already done everything I can up to this point with medications, sleeping positions, etc. We are maxed out with Carocream and Prevacid, have a Tucker sling, keep her upright constantly, etc. etc.. Been there, done that, with everything I am afraid... It seems she outgrows the medication every couple of weeks, and even without pain, the reflux during eating scares and upsets her. Now we are entering the realm of psychological issues with negative associations with food. Please help! Sara in Fairfax
Aug 03, 2003
My son's g-tube was placed when he was 4mo old and weighed just under 5lbs. (he was born at 27wks gestation). We tried various meds and positions, and all of that before doing the g-tube but we ran out of time because he was losing weight fast and diagnosed with failure to thrive. We were able to get weight on my son over the next 6mo via a 22hr/day continuous drip, to get him well enough to endure a Nissen fundoplication which he had at 10mo old. However, by that time he had aquired a nasty oral-motor dysfunction and aversion. He is now 34mo old and is still completely g-tube dependent as he will not take much by mouth. I really feel for you. A NG-tube is a possibility, no surgery required and it can be easily discontinued, unfortunately it creates further negative stimulation around the nose/mouth area. In my experience, I can tell you once you go down the oral aversion route it's a hard journey back, until the pain and discomfort are under control, the negative association can not be broken.Hope this helps-Nikki
Aug 18, 2003
Hi Sara, I met you at the first NOVA Reflux Meeting. I am sorry to hear that your daughter is refusing to eat. My son who is now 4.5 years got to that point when he was 10 months old and he had a g-tube placed at 13 months. Have they checked your daughter for delayed gastric emptying? That could contribute to the refusal of food. If things come down to tube feedings I would definately go with the g-tube because the ng will just cause more feeding aversions. Also, has anyone talked about a fundo for your daughter? I know fundo's are not ideal but having a g-tube placed can change the angle of her stomach and could possibly make her reflux much more severe. If you ever need someone to talk to don't hesitate to email me I wish you and your daughter the best of luck. Elizabeth
Aug 20, 2003
My daughter had an ND tube placed two weeks ago, at 10 weeks of age. She was diagnosed with failure to thrive and has a ventricular septal defect (VSD)--AKA, a hole in her heart...this hole, in and of itself was not a big deal (about 95% of them close on their own), but since she was not gaining proper weight, problems starting to manifest themselves (mainly congestive heart failure). We feed her three times a day by mouth (in hopes she will not develop an aversion), small amuonts, despite the fact she is on a 24-hour continuous drip. It is the biggest blessing we have had, as it is the only thing that has worked. She is now gaining about an ounce a day. You cannot let the fear of a long term feeding aversion stop you from taking action on this problem now, as you will see immediate results. Please do not hesitate to contact me directly if you would like more information.
Check with your
doctor first!