Posted By Posting
Nov 25, 2003
PJ in TN
Patti
Mom to Annie. Silent Reflux
MSPI
Ear
Asthma
Congestion Issues
MSPI Infant - Diet guidelines/education for parents - HELP
Just got off the phone with our pediatric gastro specialist, and he is not going to allow a protein/milk challenge until she is 12 months old. So I have 5 months to learn more about feeding a MSPI infant. She is seven months old. She is currently on Pregestimil formula, Nexium medication, on stage 1 solids, with a few stage 2's. Has had rice cereal, fruits & veggies, and just now reintroducing Oatmeal cereal in small amounts. Can someone direct me to educational information to get me better informed on choosing the right foods for her, reading food labels, what to avoid, etc for a MSPI infant. The doctor said no milk, no soy products and no meats until 12 months, and we are to continue pregestimil. My gosh, in reading the labels for alot of baby products, soybean oil is used on almost everything. Biter biscuits, arrowroot cookies, etc. I'm going to get the Super Baby Food book tonight - any other ideas? Thank you. Patti
Nov 25, 2003
Anonymous
Hi Patti, I responded to your post on switching formulas, but I'm going to cut and paste that response here as I think it also helps answer some of your questions in this post. If you go to the website that I mention in this post, it can tell you where to order the "MSPI Guidebook/Cookbook" by Tamara Field, at a discount. She is a nurse in our area that has had two MSPI children and breastfed the second one on the diet. The book is helpful to mothers who are not breastfeeding as it tells you how to read labels and directs you to products that are "OK" to eat when your child is avoiding milk and soy. My daughter's GI advised that Soy Lecithin and Soy oil are okay as they are fats/oils, but if you try something with either of them that doesn't sit well with your daughter, it may mean that she is one of the few that can not tolerate the soy oils either. Also at the website's homepage, there is a link to a MSPI chatroom where many MSPI moms share recipes and baby feeding tips. Here is the original post: My daughter had tried Alimentum (and several other formulas) early on and was put on Neocate at four and a half months old. Is Pregistimil completely milk protein free?? I am assuming not since it has never been mentioned to be an amino acid based formula (elemental formula). Perhaps your daughter needs to be on Neocate or a similar amino acid based formula (Vivonex T.E.N./Elecare) in order to improve and gain weight. My daughter's GI advised us to challenge her at ten months with Nutramigen (hydrosolate formula like Alimentum, they are not amino-acid based formulas) by adding an ounce of Nutramigen to each of her eight ounce bottles each day. The first day was seven ounces of Neocate and one ounce of Nutramigen, the second day was six ounces of Neocate and two ounces of Nutramigen, and so on. We did not make it past the end of the second day as my daughter returned to screaming and vomiting after each feeding, which she had not been doing for at least two months at that point. We returned to Neocate and waited to challenge her again after her first birthday. The second challenge with Nutramigen went fine. She has been on it ever since (she is now sixteen months old). Her GI advised us that he wants her to remain on Nutramigen until she is two years old. He said that introducing milk too early could cause more problems. I have been told that a test for the milk allergy may test negative, but she may still have intolerance issues with the protein that do not show up on a traditional test for an Ige immune reaction, so we haven't had her tested. A note on weight gain, when my daughter was nine months old she had a follow-up visit with her GI and he found her weight gain to be "slow". She was not failure to thrive but he felt that the Zantac that she was on was no longer effective for her. He changed her to Prilosec, which we had compouned in Caracream (makes a HUGE DIFFERENCE, she would NOT keep the Prilosec down when it was compounded in sodium bicarbonate), AND he had us talk to a dietician who gave me instructions on how to add sawflower oil to her Neocate bottles to add calories. This worked well for the weight gain issue. Cereal is not recommended for MSPI babies as the intact proteins can be hard for them to digest (my daughter screamed more than ever when we tried cereal in her formula early on). It is the last solid food that MSPI babies should try, according to our ped. GI. There is a website that has more information on MSPI (Milk and Soy Protein Intolerance) that you may find helpful. If you scroll down there is an article on MSPI that was published last July: http://www.mspiguide.com/helpfulinfo1.cfm Good Luck!
Nov 25, 2003
Anonymous
foods...
I forgot to mention what our daughter was eating when she started solids. She started on baby food green beans, she had problems with sweet potatoes, carrots and squash. She added the natural applesause with just water and apples and absorbic acid, not the kind with corn syrup - that upset her tummy. She also ate French and Italian bread (like Rotellas, check the label), graham crackers, baby food pears, and eventually peas. She was able to eat baby food turkey and chicken by ten months old and then we moved her to non-milk/soy table food. You can make mashed potatoes with chicken broth (that is milk/soy free) and fleishmans no salt margarine (check label for ingrediants) instead of milk and butter, she loved those. Again, Good Luck!!
Nov 25, 2003
pj in tn
Patti
Mom to Annie. Silent Reflux
MSPI
Ear
Asthma
Congestion Issues
Thank you
Thanks for the information. Hmm, the cereal information you mentioned is interesting. She's been on cereal since she was less than 2 months old. Thanks again. I've ordered the book you mentioned too.
Check with your
doctor first!