|Jan 17, 2004|
N-G tubesIf there is anyone out there that has experience with long -term N-G tube use that would be willing to share their experience with another family can you please contact me at email@example.com. I am a PAGER volunteer and I am working with a family that has a 17 month old with an N-G tube. They would like to connect with other families with the same experience.
|Jan 17, 2004|
|I have a 6 month old and we have had the NG tube 3 times now. Currently for the past 2 months. We have seen 2 GI specialists who both recommended the PEG. I have another friend and her daughter has had the NG for 6 months now. I don't know how much help I would be but I am willing to offer anything I can.|
|Jan 30, 2004|
Long-term NG tube usageHello,
I read the post of sharing long term NG tube use experience and I guess I would fit into that category. My son is almost 6 months old and has had the NG tube pretty much since birth. He went without it for one month after being discharged from the NICU and was barely eating so we had to take him back to a children's hospital to get the tube placed in since he wasn't gaining any weight. We try to bottle feed him as much as we can during the day and whatever he doesn't eat we put down the tube. At night he gets supplemental feedings with a feeding pump to get extra calories. I would love to speak with other parents and share our experience together.
|Jun 05, 2004|
NG tubeMy daughter is 8 months old now. We spent 10 weeks at Children's Hospital in Cincy when she was first born. She has spina bifida, which was found during my 16th week of pregnancy. She has always eaten very well until this March when we were put in the hospital for pneumonia and we have been using an NG tube since. She would occassionally suck the bottle, but would make herself gag. Now, she won't even try to suck. She does have reflux, a small ulcer before her dwadnum(misspelled) and esophagitus. We have resulted to a feeding pump during the night. I offer her the bottle 3 times a day, without success and then bolus the rest. I am so frustrated as to what to do. We are now on prevacid and carafate. She still cries out in pain approx. an hour after she eats. It breaks my heart bc I can't make her feel any better.
We are seen by the feeding team at Children's, but right now, no one has a clue. She will suck a pacfier, but not the bottle. She was throwing up at every feed until we went to the pump and smaller amounts, but it is still painful.
They say to keep a G-tube in our minds. However, that is so hard to do bc she use to eat so well. What changed that? I think she has a very sensitive Vegal nerve, but what does that tell us? I don't think she empties her stomach as quickly as she should, but... we are truly at a loss as what to do or try. Any help would be appreciated. You can email me at firstname.lastname@example.org. Thank you
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