Posted By Posting
Sep 12, 2004
Susie
12 days post fundo tummy pain when eating
My 26 month old had a nissen funduplication on 9/1. She also had a mickey G tube put in. She's feeling well, but doesn't want to eat. She gets half her daily calories at night through a 10 hour continuous feed through her mickey tube. During the day she is supposed to be on a liquid to really soft food diet. They want her to stay on her dairy free and soy free diet until she is healed and then we will challenge that. The problem is she doesn't want soup broth, jello, popsicles, baby food, applesauce etc. She is only getting 200-300 calories by mouth per day. We tried her on thicker foods, scrambled eggs, mashed potatoes and even a pureed hot dog out of desperation. She wretches and throws them up before they get to her stomach (I assume). Then she cries and wants to lie on the couch saying her tummy hurts. Is this normal? We don't go back to the doctor's until Thursday. The nutritionist doesn't know why she wouldn't be tolerating these soft foods by now and says we will have to give her bolus feedings (which I assume are just short bouts of tube feeding) during the day if she doesn't increase her calories. Has anyone experienced this? Does it sound normal for a post-fundo 2 year old?
Sep 12, 2004
Anonymous
Post fundo eating
What you're describing sounds very normal. There is a lot of swelling at the fundo site and as the swelling goes down, her eating should improve. Let her take what she is able to take orally and supplement her with the tube feeds. I hope things start to improve soon but it can take 6-8 weeks until she is more comfortable swallowing.
Sep 12, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
post-fundo eating
I think that sounds very normal too. All children heal at different speeds. If it comes back out, it doesn't sound like it made it down, which would indicate that the wrap is either too tight or very swollen. Swollen is a strong possibility! Call the doctor and ask him. Our surgeon told us to give our 2 year old only what she could tolerate. We were told to go at her speed at introducing food. Have you tried ice cream?
Sep 13, 2004
Susie
Thank you very much
Thank you. I feel so much better. I guess I wasn't sure what to expect afterward. No, I can't try ice cream because she has been on a dairy free, soy free diet for months due to her reflux. They don't want to challenge it until she is completely healed. Thanks again.
Sep 13, 2004
Anonymous
Ice Cream
Rice dream makes some ice cream that is pretty good according to my DS. He is milk/soy allergic. Also popsicles might go down well.
Sep 14, 2004
Carol
post fundo food ideas
Have you tried lemon and strawberry ices? In our town we have a place called Andersons that has different flavoured ices every day. She may be more willing to try something if it is presented in a fun way at a retaurant. The Frozen Rice Dream can be used to make a shake. How about allowing your daughter to HELP make her soft foods? She may be more willing to try and even enjoy concoctions that she has created. Strawberry syurp may be yummy in Rice Milk or drizzeled over rice Ice Cream. Are there any non milk/soy yogurts out there? Would she drink Logenberry juice? If so, whipped with a rice milk or frozen rice cream may taste like a logenberry whip.If you can get her to enjoy a milk shake type drink, you can always add egg beater for more protein. Also can add a mashed banana. It took awhile for my son to be able to eat even soft solid food after his fundo. He drank alot of shakes.
Sep 17, 2004
Anonymous
I will share (briefly)our experience with the Nissen surgery. It has been one year since our son had his surgery. I refused a feeding tube as he had been eating by mouth for so long that I didn't want to risk losing that. Jamie is multiply handicapped. He was fine for 2-3 weeks after surgery, then our nightmare began. He started vomiting everything he ate and sometinmes drinks too. This was a daily struggle. They did many tests and finally decided he had a narrowing at the end of the esophagus(where the "wrap" occurs) He had developed dysphagia and wasn't able to "push" the food through the narrowing. Each time he ate, the food would get to that point and come right back up. After many months of heartbreak, we found a therapist who specializes in integrative manual therapy and he has been working with Jamie for 8 months now. He has him eating everything(still chopped ) and he is even able to eat popcorn, Bugles and pretzels(whole) I still chop the food, as he tends to eat quickly and this slows him down a little. He has a ways to go, as he could still gain 4-6 pounds. He is happier than ever and continues to see Jay 1-2 times each week. It is something to consider if this continues for your daughter. I know I felt this would be our "cure-all" and instead turned into a nightmare. I can tell you he has not had reflux since the surgery so that is a blessing. Best of luck. Christina McHugh
Sep 26, 2004
Susie
Thanks Christina
Thank you Christina. I didn't read your email until after I posted my new help message above. That sounds familiar. Three and a half weeks post-fundo, Madeline is now throwing up liquids too. I'll call the ped GI tomorrow. Thanks. Good luck.
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