Posted By Posting
Sep 17, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
ph study question
Does anyone know if 22 episodes of reflux in 24 hours is considered mild, moderate, or severe? It sounds like a lot to me, but I know they calculate some other stuff too. I have to wait until Monday to have it interpreted, so I was wondering if anyone has anything comparable that could help me know a little more before then. Thanks!!!!! Carla
Sep 21, 2004
Amie Brock
ph question response
Carla, Essentially that is almost 1 episode per hour. One question is how long did the episodes last. Justin Gerded 7x every hour for 5-6 min at a time. He was refluxing 30 minutes out of every hour with a ph acidity of 1.2. Normal ph of the stomach is 2. This was considered severe reflux. What are they planning to do with the results of the test. What is their next action pending results? In my opinion any GERD that causes the child to be uncomfortable is too much regardless of their categorization of mild, mod, or severe! Good Luck, Amie
Sep 22, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
Amie-results
Thanks for the input Amie. I got the details from the GI and the results are enough to justify fixing her herniated fundo. She had a fundo 8 months ago, and about 4 months into it I could tell something changed because she started refluxing again. What changed is that the fundo herniated. She had an endoscopy a month ago and that's how we found out. The ph was to find out how much she was refluxing to confirm the need to fix it. We actually had already scheduled surgery; the surgeon and the GI (and myself) wanted concrete proof that it was actually making her reflux because she didn't have any inflammation this time. We got that proof and got a whole lot more detail from it too, so I am glad we did it. It appears that the hernia is putting pressure on the wrap only in certain positions because in an upright position she refluxes over and over, but when laying down, she didn't reflux at all (at least that night of the test). He saw a pattern on the results that justified fixing it. She has a narrowed airway, and consequently, breathing problems, from old reflux before the 1st fundo, so we have to err on the proactive side with this. More narrowing from acid damage could put her in an extremely dangerous place. We are doing this while she doesn't have inflammation in the hopes she won't ever have that inflammation ever again!!! So we are doing surgery on the 1st, at the very least, it will be a hernia repair; at the most a redo fundo with a hernia repair. It will all depend on how the stitching on the fundo looks and if it's too loose or not from hernia pressure. Hopefully it will only need to be a hernia repair, and hopefully it will go well!!!!! Thanks, Carla
Sep 22, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
Amie again
Are you Amie Brock? I just realized that I think I wrote you about your son's fundo alittle while back and you went to Missouri to get Chocobase, right?! I am the same person that wrote you if that's you. I just made the connection and wanted to confirm it!!!! How is your little one doing?????
Check with your
doctor first!