Posted By Posting
Sep 26, 2004
Susie
Post nissen-vomiting everything-help!
My 2 year old had a fundo done on 9/1/04. She has been throwing up anything that isn't pureed or thin since the surgery, although raisins and cheerios stayed down. The vomiting has gotten worse. A week ago, the surgeon said to keep trying to get her to eat and give her what she wants, just cut it really small. (Keep her on her dairy/spy free diet until completetly healed.) I've been mincing and puring things. Last night I tried chicken nuggets. I cut them so very very small. She threw them up and then some (eight times total by the time she was asleep). After dinner, she even threw up her rice milk bottle. Today in church she threw up her cheerios which she had been eating well up until now and then she threw up her rice milk bottle. At lunch, after church, I only gave her a popsicle. She threw that up. She is fine 2 min. after throwing up and is running around like a normal two year old. She begs me for food. She used to be able to keep down liquids like popsicles and her bottles. Now she seems to be throwing up everything. Why? Her weight isn't an issue because she is getting 10 hours of g-tube feeding at night. I don't understand why she is throwing everything up! At first, I thought that swelling at the surgical site was the issue. The surgeon thought maybe it was behavioral, feeling a strange feeling when she swallows. The fact that she is now throwing up her beloved bottles really bothers me. The throwing up originally was immediate before it reached her stomach, now it can be delayed as much as five minutes after eating. She wants to eat so badly. Is this much throwing up normal? I'm stumped (not to mention frustrated). I'm going to call her ped GI tomorrow. The surgeon seems to not really be the right person. Thanks.
Sep 26, 2004
Anonymous
post-fundo vomiting
It sounds like your daughter could still be having problems with swelling. There is a lot of trauma at the surgical site which causes the swelling. Does she ever throw up her tube feedings? If she vomits the tube feeds, I'd worry more about the integrity of the fundo. If not, it sounds like what she's taking orally isn't making it to her stomach even though its delayed by a few minutes. I know its very disheartening to have this happen but if the problems are due to swelling, it should get better over the next few weeks.
Sep 26, 2004
Susie
Thanks-no prob with tube feedings
Thanks! I can't find anything but horror stories on the web. She takes in the nightime tube feedings without any problem whatsoever. I figured the swelling would be under control by now. It seems to me that she won't heal unless we give her stomach a break. Has anyone ever fed their child through only tube feeding after a fundo. We discussed giing her bolus feeds during the day as a supplement to her by mouth food and nighttime g-tube feeds, but it turns out it isn't necessary becasue she is gaining weight okay. It sounds crazy, but I wonder if feeding her exclusively by tube feeds for a short while would rest her stomach. Who knows. Sounds a bit over the top I guess. I'm just surprised. I didn't expect all this vomiting.
Sep 27, 2004
Christine
Same story here...
My Son is 3 and had his fundo done in April. He did not vomit right away, but he retched all the time, someitmes for 40 mins straight, but he also retched with the tube feedings as well. A couple months later, he started to projectile vomit thru the fundo. Now he has had a gj-tube placed, and just last tuesday had the J-tube placed, and he is still vomiting. Not forumula, but the dark green bile. Now nothing goes into his stomach, just the j-tube. The surgeon is the one that has helped us tremedously, and if it was not for our surgeon, I think I would have gone over the edge. As much as our GI cares, the surgeon is much more in touch with his patients. After all he is the one who did the surgery. We are now stuggling to stop the vomiting, so I know your frustration. But given it was a month ago, I would try to let the swelloning go down. I wish I would have done that.
Sep 27, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
post nissen vomiting
I was thinking (like everyone else) that it was swelling. It sounds like it started out that way at least. Our surgeon said if we gave our daughter something too soon (either in amount or solidity), that it wouldn't go all the way down. It would come back up. He said if that happened to take a step back and offer what she tolerated well before at very small portions. For our daughter, food would get stuck in her esophagus before it went all the way down, and the surgeon said this is really common with foods like french fries and all types of meat, especially when there is still swelling. Our daughter never vomited or wretched after her fundo, but food would definitely get stuck before going down and it hurt her a lot. The delayed vomiting could be it getting stuck before coming back up. This is kind of gross sounding, but when the chicken came back up, did it look exactly the same way it looked before it went down? If so, I think it likely never entered the stomach. It makes me mad that your surgeon isn't so helpful, because he should be...he did the darn thing!!! Our surgeon was great, and still is a big help. If anything, I would persist in getting him to help and see GI like you already plan too. It took our daughter a few months to eat normally, and that was good for most kids. In the meantime, trying to minimize how much she takes at one time and what she takes may help minimize the vomiting. I am sorry you are going through this, I know it is so hard!!!! Good Luck, Carla
Sep 28, 2004
Christina
post-Nissen Vomitting
Our son had the same problem. I was in tears. I thought the Fundo would be our saving grace. Instead it was a nightmare, only worse because I had refused a feeding tube. Jamie had eaten "normally" for many years before his reflux got very bad. I not only was dealing with constant vomitting, but also trying to keep him hydrated and trying not to let him lose very much weight. We had tests to see if the wrap was too tight(it wasn't) and also a barium swallow to see why things kept coming up. He had a narrowing (this is normal), but he lacked the ability (motility) to push the foods through the narrowing. I was lucky to find an integrative manual therapist who worked with Jamie to stimulate the Vegas nerve which stimulates swallowing and he has been our lifeline. We still see him once a week, but originally 2-3 times a week. He has Jamie eating everything my mouth now. Popcorn, bugles, funyons, etc.. I cancelled the feeding tube surgery twice and the last time for good. We still have a ways to go and it has been an entire year. Please don't give up. i felt so overwhelmed at times as if no one understood what it was like so I can tell you from experiencem just keep trying. Please feel free to contact me with any questions. my e-mail is cmc81888@aol.com. GOOD LUCK
Sep 28, 2004
Susie
The vomiting was because of an obstruction
Madeline had emergency surgery last night and is doing great! The inital vomitng is still considered due to swelling, but the vomiting of water, rice milk, popsicle etc. since Saturday turned out to be an obstruction of food. She is already back to herself again. At first the surgeon's office said to give her stomach rest from food and they would do an upper GI in a few days. They said that if it were an obstruction, she would have already vomited it. I insisted they get her in right away. They did. Once they saw the obstruction they took her right away and admitted her. After the surgery, I asked the surgeon to turn me over to the ped GI. Our ped GI has a more conservative approach, nothing more than liquids for one month after a nissen. Our surgeon allows a regular diet after two weeks, which is why the food all got stuck. Before the second surgery, the ped GI said they couldn't get involved this soon after surgery since Madeline is still considered a surgical patient. After this, the surgeon turned her care over to the ped GI at my request. The problem here is that they have privleges at two different hospitals so they can't work as well together. Madeline is now on a liquid only diet plus nighttime g-tube feeds for two weeks and is a very happy camper. Thanks everyone for you help and stories. Susie
Sep 30, 2004
Anonymous
I'm glad Madeline is feeling better and that you know why she was vomiting. What kind of surgery did they have to do to remove thefood that was stuck? I'm sure its a relief to have a more conservative plan.
Oct 03, 2004
Susie
Surgery type response
Thanks for your well wishes. You asked what type of surgery they did to get the food out... She had an upper GI to diagnose the blockage, was admitted and then they did an esophagoscopy under general anesthesia (hard tube put down esophagus, then forceps to pull the food out or push it through the nissen) and then an esophogram (like an upper GI but dye instead of barium) to make sure nothing was perforated from the surgery. We are now with a more conservative, less aggressive m.d. She's on a liquid only diet so she isn't throwing up at all. She originally threw up thick foods from the swelling after the nissen but once she started to throw up water and all liquids, that was when we knew something was wrong. She's happy now. Thanks.
Oct 04, 2004
Anonymous
I'm so glad things are better for her and that the scope went well to remove the blockage. I hope things continue to improve.
Check with your
doctor first!